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06/02/2008 05:31
tomro62
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All,

At Connie's request, I am going to post the link to order the "play only" version of the Under Our Skin DVD. I was getting many requests for the info, so this is definitely a better way to do it. I'm sorry, I should have just done it in the first place. Here you are:

http://www.underourskin.com/dvd

I hope this comes through okay.

Tom

I am not a doctor, and nothing I say here should be taken as medical advice of any kind.

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06/02/2008 06:28
Clayton72
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Thanks Tom!
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06/02/2008 07:55
synergyman
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Tom,

Thank you. It is officially ordered.

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06/05/2008 08:02
organictexan
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Thanks so much Tom, just ordered mine.
If you're going through hell, keep going. ~Winston Churchill
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06/05/2008 09:57
ldsucs
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I ordered mine a couple weeks ago. Did anyone get theirs yet?
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06/05/2008 22:23
synergyman
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The DVD arrived this afternoon. We watched it this evening.

The documentary is magnificent.

I am stunned at how well the film captured the angst of living with lyme disease. I believe the IDSA's callous lack of integrity with respect to science is criminal. Their political motives are purely based on greed. As an executive of a major publicly traded company, the SEC would put my ass in jail and throw away the key, if I was guilty of the same collusion and conflict of interest the ISDA, insurance companies, and drug companies so egregiously committed.

Bottom line, the IDSA is unethical and their guidelines and financial relationships with insurance companies and drug manufacturers are criminal.

It is late and time for bed. But I feel compelled to tell you I am stunned. I am angry. I am scared. But most of all I am pissed off!!!!

Stunned by the courage of those affected by Lyme and the brave Doctors who risk everything to help us. I am stunned that this political war, fueled by greed and arrogance, exists at all.

Angry, because including myself, 3 family members suffer from late stage neurological lyme disease. In 2007 out of pocket treatment expenses for myself cost over $27,000. 2008 will be even more costly because my wife now has Lyme disease. I am angry because of the oh too numerous doctors who denied the existence of Lyme.

I am sacred of what will happen to patients if the LLMD's are forced to quit their practices. We believe several other extended family members may have Lyme. Who will diagnose and treat them? Hell, how will they pay for their medications? I worry terribly about my grandkids. Will they contract this disease?

I am pissed off because I am ready to fight the establishment. But I don't know what to do or where to begin to achieve a positive result.

Kim

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06/05/2008 22:36
synergyman
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The DVD arrived this afternoon. We watched it this evening.

The documentary is magnificent.

I am stunned at how well the film captured the angst of living with lyme disease. I believe the IDSA's callous lack of integrity with respect to science is criminal. Their political motives are purely based on greed. As an executive of a major publicly traded company, the SEC would put my ass in jail and throw away the key, if I was guilty of the same collusion and conflict of interest the ISDA, insurance companies, and drug companies so egregiously committed.

Bottom line, the IDSA is unethical and their guidelines and financial relationships with insurance companies and drug manufacturers are criminal.

It is late and time for bed. But I feel compelled to tell you I am stunned. I am angry. I am scared. But most of all I am pissed off!!!!

Stunned by the courage of those affected by Lyme and the brave Doctors who risk everything to help us. I am stunned that this political war, fueled by greed and arrogance, exists at all.

Angry, because including myself, 3 family members suffer from late stage neurological lyme disease. In 2007 out of pocket treatment expenses for myself cost over $27,000. 2008 will be even more costly because my wife now has Lyme disease. I am angry because of the oh too numerous doctors who denied the existence of Lyme.

I am sacred of what will happen to patients if the LLMD's are forced to quit their practices. We believe several other extended family members may have Lyme. Who will diagnose and treat them? Hell, how will they pay for their medications? I worry terribly about my grandkids. Will they contract this disease?

I am pissed off because I am ready to fight the establishment. But I don't know what to do or where to begin to achieve a positive result.

Kim

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06/06/2008 04:29
ConnieD
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Hi Kim,

I can't wait to see the movie. I am going to have my own 'screening' at my house when it arrives. My friends have been so supportive of me during my recovery. They have heard about the movie and are anxious to view it.

I share the same feelings regarding the 'establishment.'

It's ridiculous and shameful the way Lymies are treated. It makes me shudder to think of the thousands (hundreds of thousands?) of people who are rotting away with lyme because they are either undiagnosed or improperly treated.

I am ready to stand up and fight but I don't know what to do either. I am healthy now and have the energy to represent us, but I don't know what to do.

I am scared for the future, too. Ticks can pass Lyme to their babies. One female tick lays 20,000 eggs at a single time. Do the math. It's a very scary thought.

I'm ready for battle when the call comes .

Connie

Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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06/06/2008 04:42
ConnieD
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P.S. I'd also agree that our doctors are brave ,indeed. Think about it, they risk ridicule from their peers and they risk being 'shut down' by the powers that be, all to rescue us lymies while other doctors just turn a blind eye. It really makes me sick when I look back and remember how I was treated. My docs wouldn't even test me for Lyme!!! "It's only in the North," that's a direct quote from my internist. "You've had every test that exists. I suggest you see a psychiatrist," is another quote from my rheumie. It is maddening. I'd be dead in five years if I had listened to them. Really.
Please do not take anything I say as medical advice. I am not a doctor.

Open your mind to the possibilities available to you.

An attitude of gratitude is good 'medicine,' too.

~Lyme Disease Support Group Leader~
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06/06/2008 06:29
synergyman
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Connie,

I can't wait until you get a chance to see the film and to hear your thoughts. This documentary is a call to action. All of us on this board must push its message to the world.

Kim

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