MDJunction - People Helping People
 

Why wear a ribbon?

 
"to support all those struggling with this terrible disease" (dontlikelyme)

MDJunction to me

Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
into the pitfalls my parents did when I was young, give them a bit of a view
from their child's perspective and simply be there to offer support and
hope to people who are scared and just had their lives upended. I also belong to a chronic pain group and it's been a Godsend to be able to actually
talk with others who understand what I'm dealing with. Besides them helping me through my tough times, I can be there to help them as well. Here too, I can use my years of experience to help others avoid pitfalls and it makes me feel good, gives my life more purpose. MDjunction brings people
together when their suffering, at their darkest and feeling alone in this world and allows some light to be brought back into their lives. HOPE, that's what
MDjunction means to me!
Linda aka Macv
" (Macv)

more testimonials
Lyme Disease Support Group
A community of patients, family members and friends dedicated to dealing with lyme disease, together.
Join This Group
Group Home   Forums   Articles   Members (7828)   Diaries   Leaders   Guidelines
Lyme Group RSS Feed
Lyme Disease ForumsGeneral & SupportAnyone ever experienced burning pain?
11/21/2009 07:56 PM
ladio30
ladio30
 
Posts: 115
Member

I started getting burning pain in my stomach and around my kidneys so I thought maybe I might have a kidney infection but I have no fever. Now I have burning sensations on my skin on other parts of my body? Is this a lyme symptom?
Neck pain, spine pain and back pain all with cracking. Intermittent blurry vision. Migrating joint pain, ear pain, eye pain, shooting pains throughout my body. Knuckles on hands occasionally turn blue. Internal vibrations, burning sensations, shock like sensations, nerve pain.

Was on abx for 6 weeks after having severe headaches, blurry vision, neck pain, tingling and numbing. Was getting better and almost fully recovered and then started getting worse 1 month after being off abx.
Reply

11/21/2009 08:05 PM  Top
TaraT
TaraT
 
Posts: 4164
VIP Member

I would say yes that this could very easily be a symptom of the neurological part of lyme..but ya know the drill........if it's a new symptom and it's serious enough to ask us then you need to consider talking with your doctor...preferrably your neuro if you have one.

I sure hope it stops burning....Take care of yourself!

With Him we "live" no matter the circumstances. At His feet peace of mind can be found. Peace that passes all understanding is my quest now and forever.

Numbers 6:24-26
"The LORD bless you and keep you;the LORD make his face shine upon you and be gracious to you; the LORD turn his face toward you and give you peace."

11/21/2009 10:14 PM  Top
waxby
waxbyPosts: 4120
VIP Member

Yodioladioyodio le he hooooo, ladio30 hoooo. Ya know,its not so much each individual symptom as much as the whole picture that it paints.In my beginning,ten years ago,after I had several dozens of tests to see what was barking up my tree, and after dozens of symptoms and trying so many things to correct those problems and finding nothing to palliate any of my pins and needles,bumps and grinds,hills and valleys,I just learned to accept each new symptom as part of the picture and just observed them coming and going,coming and going.It's the picture of Lyme.Every time an unusual new symptom appears I just sorta say to myself "oh yeah.You...again...still",

and then just get on with my buissiness.Even my Dr does the dance.Two years ago when I showed him my alarmingly deep purple toes he just said lets just keep an eye on them-for a year and a quarter!They finally faded to normal as dozens of the other tokens did as well...just to be replaced by some more etchings!I wouldn't suggest how you should deal with your doodles except to say relax a little as the picture continually materializes.Try to stay calm knowing that this beast strokes its canvas independently.Take refuge in your higher Self and create your own masterpiece while the little Freak Lyme you know what creates ITS style.There are two of you. Unfortunately you are the pallate on which this critter mixes its shades.So it gets crowded and uncomfortable and its oils stink,and so it is difficult to concentrate-not impossible......Goin on aren't I? I best retreat back to my easel....next to my straight jacket....in my padded cell.......with the Freak Lyme you know What.......Rainbows and Bridges,Mitchell.........

Post edited by: waxby, at: 11/22/2009 03:08 PM

Post edited by: waxby, at: 11/22/2009 06:39 PM

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell

11/22/2009 05:11 AM  Top
novie2
novie2
 
Posts: 32
Member

OH, something I live with everyday especially the outside of my lower right leg for some strange reason......always in the same place .....but other times my knees and other parts of my legs especially after standing more than 10-15 minutes.
No it's not all in my head......I have Lyme Disease

I am not a Doctor and I've never even played one on TV, I am just a Lab rat with Lyme, experimenting on myself.

11/22/2009 09:35 AM  Top
ladio30
ladio30
 
Posts: 115
Member

So all of you that have this and other symptoms, does it ever go away even with treatment? Please someone tell me there is some hope. Sad
Neck pain, spine pain and back pain all with cracking. Intermittent blurry vision. Migrating joint pain, ear pain, eye pain, shooting pains throughout my body. Knuckles on hands occasionally turn blue. Internal vibrations, burning sensations, shock like sensations, nerve pain.

Was on abx for 6 weeks after having severe headaches, blurry vision, neck pain, tingling and numbing. Was getting better and almost fully recovered and then started getting worse 1 month after being off abx.

11/22/2009 10:41 AM  Top
waxby
waxbyPosts: 4120
VIP Member

Hi Ladio. I've had many dozens of symptoms over these years(including the kids and your others too) and almost all of them have dissapeared, only to be replced by others.I can only hope these latest symptoms will skidaddle too! Is there some hope?Yes.

Post edited by: waxby, at: 11/22/2009 10:43 AM

~~ "The way to 'Heaven' is to bring it with you ..." -Mitchell
~~ "Sometimes, we gotta go through hell to get to 'Heaven'" -Mitchell
~~ "The way out is in" -Mitchell
~~ "A miracle speaks ...'I don't believe in Miracles.' " -Mitchell
~~ "Life is good, even when it isn't." -Mitchell
~~ "Sometimes you gotta lose to win." -Mitchell
~~ "It's easy when it's easy! Find reason, purpose and meaning when it's hard!" -Mitchell
~~ "If you're gonna think, think again!" -Mitchell
~~ "Make it so!" ...
~~ “When life do what it do, as it do-do, simply say ‘Of Course!’ (to soften life’s ‘blows’)” - Mitchell
~~ A master once said, "When embarking on the spiritual path, 'Oh Dear! There's no turning back! You've really done it now!' "
~~ “Not thoughts be your guide, rather, guide your thoughts.” -Mitchell
~~ "That which is within, and that energy entering this body/mind/spirit, causing harm and ill health, must and will be transformed into love healing energy and sent out in every direction" -Mitchell
~~ One morning ten years ago I awoke from a dream chanting over again and again, and writing this down so as not to forget ... "It doesn't matter who did what, there's nowhere else to go but up ..." -Mitchell
~~ "This life, our life, and what we do with it on this planet is “simply” a display, a reflection, of what is going on in our consciousness. The proof is in the puddin’. Look at our planet, what humans are doing to it, and with it, and to one another, and ask yourself ... ~ 'How’s this working for us/me?' ” -Mitchell
~~ "Step away from monkey mind, not tangle ... Observe ... Inhabit your higher self ..." -Mitchell
~~ "Anything is possible, but manythings you think are true, are not ... " -Mitchell
~~ "Grow where you are planted ..." -Mitchell
~~ "Change your future now ..." -Mitchell
~~ “Write your equation … 4 u r the sum of u … “ -Mitchell
~~ “We are largely a product of our environments … how’s your inner environment doing? …” -Mitchell

11/22/2009 01:46 PM  Top
learning721
learning721
 
Posts: 369
Member

I get twinges of burning that come and go and i'm hoping they GO forever after treatment...if it's very painful i would ask about it but otherwise i agree with waxby.

Previous discussions I participated in:
Hi-new to MDJunction

11/22/2009 03:12 PM  Top
Julie4848

Oh that awful burning, I remember it so well.. Lyrcia did help me with that, but had to stop the drug due to water gain. Also I would apply my COLD rice socks to my upper chest (that is where my burning was) and that did help a lot. I could not even put cloths on for two weeks due to it.

When I get sick (which I'm getting at the moment) I get the mild burning back for some reason.

After I started treatment it did go away.

And yes THERE is hope, never think otherwise.

I wish you the best of luck in your treatment.

Julie


11/22/2009 04:21 PM  Top
ladio30
ladio30
 
Posts: 115
Member

I have to add that it isn't burning pain on the outside of my skin but rather feels like it is coming from the inside.

I really hope this naturopath that I am going to see tomorrow can help me because no MD in Canada will help at all.

Neck pain, spine pain and back pain all with cracking. Intermittent blurry vision. Migrating joint pain, ear pain, eye pain, shooting pains throughout my body. Knuckles on hands occasionally turn blue. Internal vibrations, burning sensations, shock like sensations, nerve pain.

Was on abx for 6 weeks after having severe headaches, blurry vision, neck pain, tingling and numbing. Was getting better and almost fully recovered and then started getting worse 1 month after being off abx.

11/22/2009 05:26 PM  Top
Ini29
Ini29
 
Posts: 51
Member

All of that is Lyme that smart bactiria are just traying to mimic other illness or symptoms so we I'll think is something else but God is good let's just eat healthty everyday I'm doing it and is helping alot I'm going to the sauna too which is making my body feel great .Good luck
Reply

Share this discussion with your friends:
Members who viewed this page also read:
<< Start < Prev 1 2 Next > End >>

LymeLyme Disease ForumsGeneral & SupportAnyone ever experienced burning pain?

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice.
In case of EMERGENCY call 911 or 1.800.273.TALK (8255) to the National Suicide Prevention Lifeline. Read more.
Contact Us | Bookmark Us | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | MDJ Advocates | Advertise
Copyright (c) 2006-2013 MDJunction.com All Rights Reserved