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Some random thoughts....



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05/30/2008 07:57
tomro62
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Hey everyone...it's Tom.

What an explosion of new members out here lately! My gosh I feel for all of you and want you to know you are no where near alone in this! Keep throwing your thoughts out here and you will get info that will help you, I promise.

Okay, got a few things for you....

My wife (yes, I've mentioned several times she is an RN and has really educated herself on Lyme and co-infections...lol) recently bought Dr. Kenneth Singleton's book, The Lyme Disease Solution. Dr. Singleton is here in the Baltimore area and has been treating Lyme patients for many years. He himself was infected with Lyme and developed many of his treatments to get his own situation under control. He is a smart and dedicated doctor who really cares.

For those that have already read a lot about Lyme, most of the book is pretty much review material. However, I have garnered some nuggets of information that have been thought provoking. His writing goes from explaining to the layman, to explaining in a way that only a medical professional would understand, but in the end he gets his point across. For those of you who are geared more to the natural treatment of Lyme, Dr. Singleton is a big believer, but he does use medications as well. His thoughts seem to mirror mine; that the meds are needed to get things going, but you can work towards taking care of yourself by rebuilding your immune system and body.

If you are looking for a book to add to your Lyme library, I don't think you'd be wasting your money on Doc Singleton's. It's worth it. You can find information at www.lymedoctor.com.

I just reserved tickets for my wife and I to see Under Our Skin, the long awaited documentary on Lyme Disease. It is a selection at the Silverdocs Film Festival in Silver Spring, Maryland, June 16-23, 2008. We will be seeing the movie at a screening on June 17th. I will post information here, after I have seen it. You can go to www.underourskin.com to get on the mailing list for future screenings. There are more and more all the time.

I have spoken with the director of the film and they are still negotiating theatrical film rights, but the movie may just go straight to DVD in the end. They are making a "play-only" version available in June, with a full blown DVD at a later date. If anyone would like more information, just send me a PM.

I was reading recently about the Lyme Disease Association and ILADS running their conferences concurrently in San Francisco this October, and decided to check out the IDSA annual conference. It is set for late October in Washington, DC, so it's close to home for me. Of course, I can't attend, but I am still trying to weasel a way to get in. Why?

Well, I have read their tentative symposia schedule on their web site, curious to see if there was going to be a discussion on Lyme disease...and no, not yet. I say not yet because there was a section near the end that said they were developing 10 additional symposiums, one being Tick Borne Diseases. I will check back further through the summer to see how that develops. I'm sure they are waiting to see how things progress with their lawsuit settlement and when the investigations by the review panel start. It should be interesting, so I'll keep everyone informed.

Sorry to be so long-winded, but I had a lot of things I wanted to share, and that is what this site is all about.

Take care and be well.

Tom

I am not a doctor, and nothing I say here should be taken as medical advice of any kind.
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05/30/2008 08:05
Clayton72
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Good info - thank you! Definitely keep us informed -- all good stuff for us to know about!

I'll look into that book today. I just got some info on it in an email yesterday.

Thanks!

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05/30/2008 20:21
denise17
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Thanks for the post,

I'm like a sponge for lyme info and it's nice when I don't have to hunt for it.

Take care, Denise

Denise


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05/30/2008 20:38
synergyman
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Tom,

Thank you for the update on the "Under Our Skin" documentary. I am envious but very happy you and your wife will get a chance to see it. I look forward to your review. Unfortunately, I live in Minneapolis and will just have to wait until they show it here. Or it comes out on DVD. It is a hard wait. So if you hear when it will show in Minnesota please let me know.

I will also get the book you recommended.

Warm Regards and Have a great weekend.

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05/31/2008 04:34
savvy
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Hey Tom,

I just watched the trailer on that documentary and OMG was that incredible! It brought tears to my eyes! Ok ok, everything brings tears to my eyes, but these were genuine earned emotion tears.......what an awesome film! I sent it out to all my friends on myspace. I am slowly trying to educate them one by one although I think most of them secretly wish I'd just shut up already!

Thank you so much for the info.....ONCE AGAIN! Enjoy the movie with your wife and I signed up for the mailing list so if it does come up to New York, my husband and I can go see it as well. He's not a nurse, but I've been so lucky to have him care so much for me to learn every bit that he can to take care of me. I'll check into the book too. I just bought a book on Lyme, I find it hard to read things in book form right now though, not sure why. My eyes get really screwy though, but my hubby reads to me when I am having too much trouble. Funny how the internet doesn't seem to bother me huh? maybe the spacing....

Anyways, hope everyone is having a good day. So far, I'm ok. We got lots to do today, going to a Luau and I'm going to go make some Banana Quessedilla's and my world famous garlic dip (NOT to be eaten together......LOL)

~Savvy

~*Savvy*~
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05/31/2008 12:56
tomro62
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Savvy, Synergyman (and wife), Denise and Clayton....

Glad the info was helpful. I will PM each of you with the info on ordering the play only DVD. If you go to the web site, you will also find a section about requesting a screening. I'm not sure how it works, but even after seeing it, I'm sure I will still buy the DVD.

They have added a third showing of the movie to the film festival I am going to, and they are having a discussion afterwards. I may have to go to that one too....

Tom

I am not a doctor, and nothing I say here should be taken as medical advice of any kind.
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05/31/2008 16:17
ConnieD
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Thanks for the info Tom. I had a friend tell me about an XM radio conversation about a lady telling everyone to see this Lyme movie. My friend told me that the interviewee went on and on about how moving this was. The interviewee didn't even have Lyme!!! I would love to see this, buy it, whatever. So, please post the info on this site publicly.(if allowed). Others may share the same feeling . Thanks!

Peace,

connie

Please do not take anything I say as medical advice. I am not a doctor

~Lyme Disease Support Group Leader~


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05/31/2008 21:12
Luvdtoteeup
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Hi Tom,

Could you PM the info also to me. It's Luvdtoteeup requesting this also, Thanks so much if you will do this for me. Appreciate what you are doing for all of us. Many thanks.

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06/01/2008 08:01
Clayton72
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Awesome! I have connections into the AFI Dallas Film Festival and the USA Film Festival - would love to get it to those peeps!!! Maybe we could get a screening here.

Gracias, Tom!

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06/01/2008 08:01
Clayton72
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And, banana quesadillas???? I want one!!!
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