I have this sensation throughout my arms and legs, it feels like a rush of heat. Has anyone ever had those symtoms? I've lost my hair in the crown of my head, fatigue..I could go on, but my concern right now is the heat feeling.

I too get the heat feeling throughout my body. My skin sometimes feels like it is on fire and I cant stand to be touched when this happens. I lost some of my hair when I was first dianosed. I take plaquenil, methotrexate, and mobic. I used to be on prednisone but I hated it.

Hope this helped.

Trudy

Thanks again for replying...glad to know it's not in my head.

Kimberly

I also get the heat and it started in my feet they felt like they were on fire. I was told that this was neuropathy. I have central and pheripheral nervous system lupus and I believe that the heat I feel is from that. I was also scared to take methotrexate and prednisone but I was also scared that the disease would progress rapidly if I didn't take anything. I am now on cellcept and winging my way off of prednisone. I was on this for 15 years and the metho I was on for 2 years and it wasn't enough for me so ended up taking cellcept which has helped me. You really should rest if you can everyday. I try to take some time just to sit and listen to music or read a book just try to relax. I also take a bath in my jacuzzi tub every night that seems to relax me and help with the pain.

Eva

Keep us posted.

Thank you, I do need to get plenty of rest. I need to learn to say NO and just rest.

Eva, the heat I feel is just uncomfortable, not painful. Did your heat feeling begin gradually...I mean on a scale 1-10???

Eva

Eva