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05/13/2008 13:26
fibroforever
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Tameka-

You are such a sweet person!

It sounds like you're laying a lot of guilt on yourself. Please try not to do that.

My mom passed away 11 years ago (I was only 29) of Systemic Lupus. She had been on dialysis for 8 years prior to deciding that she just couldn't do it anymore. She was down to lik 80 some pounds.

My husband and I tried so hard to be there for her every minute of every day. There were times that I actually hated that woman! She would become so bitter, so needy, so selfish, etc. And thank goodness for my hubby- he would remind me that it was the meds talking, not my mom.

Anyway, I feel that we missed out on a lot of time with our children when they were younger because we were always hiring a babysitter to care for them. So we could care for my mom. I can tell you- my guilt runs the opposite way. I feel bad for not being there for my children.

When my mom passed away- our youngest was 5. She totally didn't understand what was happening. She walked up to the casket and said, "Grandma, are you gonna wake up?" I can't tell you how that broke my heart. Our other daughter was 12 at the time. She was SO heartbroken. She spent a "lot" of time with my mom. She was old enough that she would go to grandmas and read books and watch movies with her. She was there when my husband and I weren't.

About 3 years ago, our oldest got married. We were all sad because my mom was gonna miss out on this wonderful event. So, we put an 8x10 picture of my mom holding this daughter close to her face on a platform at the front of the church. Along with the picture was a yellow rose. -This is just an idea for future years, if you want your mom remembered at your children's weddings. -A lot of my mom's friends had been invited. They had such wonderful heart-felt feelings about the picture, and the meaning.

I could go on and on, AND ON (I really should write a book). But I'll stop with that. Feel free to send me a message if you ever want to talk more. Or if you have any questions. I feel that I'm a walking book of knowledge when it comes to Lupus, Fibro, Anxiety, and Depression. When my mom was diagnosed with Lupus, there was only one doctor in the state that knew anything about it. I was just a teenager. My mom became an advocate for Lupus. She was on the National Lupus Foundation Board, back in the day. Her, along with some of her doctors would travel to other states- bringing awareness to others. Especially to the government.

You take care or yourself. Take care of those precious children. Time heals the hurt, and I promise you- You will never forget the memories.

Amy

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown
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05/14/2008 22:48
tameka1980
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Thank you for your kind words.What really hurt me the most was that she was dying and I did not see it. I wish that I could have done more to make her life easer,but I did not. The week that she died,she sent my daughter up to stay the week. That whole week did not feel right,it seemed cloudy everyday. I understand that everyday gets a little easer, and i will never forget her. I remember her bural,it was so unreal. I walked up to her white coffin and looked at her,she had on a pretty pink suit that her sister picked out, and her body was bloated because her kiddneys shut down. She did not look the same. I did not cry any,they closed her coffin and covered it with the flag,and that was it. I miss her so much.
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05/15/2008 10:41
TLClose
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Dear Tameka

Reading your post just made me cry. I wish I could hug you in person. I am so sorry for your broken heart on the loss of your mom. I would feel the same way.

My mom is a cancer survivor, she has been in remission for 1 year. I was preparred for the worse because she was so weak and sick. But I know if anything was to happen to her it would devistate me. I love her so much and she is so strong.

I am here for you as well as everyone else that has responded to your post.

We love you and I will keep you in my thoughts everyday.

Love

Trudy



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05/15/2008 10:52
tameka1980
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Thanks,hugs are great. Im glad your mom is doing well,moms are something else. My mom use to tell that women are stronger than men. And now I see why. Thanks

Tameka

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