mysoulloveu2
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Hi Cads! I am also new, and I am just at the starting point of dealing with the doctors and tests etc... I had Raynod's which I was never aware was a sign/symptom of lupus. I also had anemia. I get joint pain, but the thing of it is I have always had a high tolerence for pain. I mean, I was in premature labor with my son and having strong contractions, they looked at the monitor and said,"your not feeling that?" I didnt I just went to the doc cause I just felt off. When I was going into heart failure and my lungs were filled up. (from the fluid and inflamation from lupus) I went to the doctor with what I thought was the flu, I just didnt feel right. He admitted me and three hours later I was having emergency heart surgery. So, really at this point I am really trying to listen to my body. Here are some of my symptoms and signs: Raynods anemia Joint pain Inflamation (paracardial window and fluid drained of my lungs) rashes fast heart rate fatigue (given) High ANA plus starting to have digestive issues These are some of the major ones. You sound like you have been through a great deal, stay strong! I know I have been getting really depressed because I have had to stay in the house pretty much for the 3 weeks after my surgeries. I have been buggin people like crazy because I have felt so alone. Plus, I am not sleeping because of the pred and I am up at all hours of the night. So, I will be on here a great deal. I am here and I looooooove to talk lol  I am so glad that you have a new doctor that you feel comfortable with! I think that makes a big diff, the communication. I felt like the doc was not really listening to me, and honestly that is like one of the worse feelings in the world. It seems you have a great understanding of that! How many doctors have you seen since you were diagnosed? |
"MDJunction to me is somewhere i feel safe i feel i can be myself and not be judged. I love the fact that i get to see that im not alone in what i am going through and i also get the chance to help others on their journey through guidance and communication.
ever since. I have been back and forth with doctors and specialists one say's you should not have been able to have a kid with lupus the other say's your hair should not be growing back with lupus. Yes I lost my hair or a lot of it. But it all grew back thank goodness. The last Rheumatologist I saw said yeah we're gonna say you have Lupus but there's nothing we can do for you. And I've left it at that for a while now. But lately things have been getting much worse. I do have a Doctor that is actually taking the initiative now and hopefully the new Rheumatologist he sends me too will as well. 
there have also been things in the past that I wonder now if the are related to this. At any rate I've been up and down with this just the same and I don't know about anyone else but I sure get tired of dumb doctors. But I try my best to keep my spirits up and not to complain too much even tho sometimes I would like to just crawl into a hole and hide from the world. And as all of you I have my good days and bad.