Why wear a ribbon?

"In memory of my husband's Grandmother who died in September 2008 from complicati..." (selkins16)

MDJunction to me

"As someone with Bipolar II, it is not easy finding people who understand. Here at MD Junction, EVERYONE understands. What an incredible feeling it is knowing that I don't have to deal with this disorder alone. MD Junction is the best resource I have found on the internet as support for just about any mental or physical condition." (Colleenj)
We comply with the HONcode standard for trustworthy health information:
verify here.
Lupus Online Support Group
A community of patients, family members and friends dedicated to dealing with Lupus, together.
Join This Group
Group Home   Forums   Articles   Members (352)   Diaries   Leaders   Guidelines
Related discussions:
03/20/2008 23:38
magicat
Purple Ribbon
Posts: 4
New Member

Send a PM
Give a Hug
I went to a rheumatologist last week. He had me to get some blood work done, and I was supposed to see him next month. His office called as soon as the blood work was back and said I needed to come back in very soon, as there was some problems with my lab results. The nurse said the labs showed inflamation. I work in the hospital where the blood work was done, so of course I have the results too. I have a positive ANA, but I have known that for a few years. The result that I did not expect was a positive for Anti DNA (DS) which I understand is specific for SLE. I have multiple symptoms, so I fully expect the doc will tell me tomorrow that I have Lupus. I have a very stressful job. Actually, in fact, I have 2 stressful jobs. 1 is full time and 1 is part time. I am passionate about what I do. I worked my way through college as a nursing assistant while being a single mom. I finished my Masters degree a few years ago, and I feel threatened by the possibility that this disease will limit what I can continue to do. I feel like if I go to the MD tomorrow and he tells me that I have Lupus, it will be an unwelcome turning point in my life. I know many of you know what the lab results mean. I have worked in the medical field for many years, but I have had very little exposure to the study of autoimmune diseases. I have read a lot over the last 2 days since the MD office called me, so I may be over reacting. Can anyone give me an opinion on this. I am not sure of what I do or should feel at this point. Mostly I just feel numb, but I do not want to change my life. Hopefully it will be nothing, but I have also been in the medical field long enough to know that the doc does not call you right back in for nothing. I can deal with fibromyalgia, joint pain and anemia as seperate diagnosis, but I am afraid the diagnosis of Lupus may be bigger than me. I have always said that I did not have to look far to see someone with worse problems than me in my job, and that is true. I am not afraid that Lupus will kill me any time soon, I am afraid it will limit what I can do. It is 1:30 in the AM. I left work at the ER about midnight, and I see the MD in the morning. I cannot go to sleep.

Thanks for listening

Magicat.


Popular posts by magicat
    MD visit
Reply  


03/21/2008 09:30
mumeva
Purple Ribbon
Posts: 284
Group Leader

Send a PM
Give a Hug
Hi,

So sorry to hear that you might have lupus. You know, I've had lupus for about 15 years and it does change your life to an extent. Don't let it consume you. Just lead your life as it is and take one step at a time. The only thing that has changed me is I cannot be in the sun or artifical lights. Some people with lupus can. I have central nervous system lupus which of course affects the nerves through out my body. I also have peripheral nervous system lupus which affects my right side of my head-ear and I get the lupus headaches and get confussed and fuzzy in my head. I deal with it the best I can and try to have a positive outlook because I believe that is the key. Good luck at the docs.

Take Care,

Eva

Reply  


03/21/2008 16:06
magicat
Purple Ribbon
Posts: 4
New Member

Send a PM
Give a Hug
Thank you Eva. I appreciate your reply. I went to the doc today, and he wanted me to do more blood test. the test I had is positive for lupus, but he wants to get other results before he gives me that diagnosis. I will see him again 4/8/08, so I will try not to be such a drama queen until then.

Magicat


Popular posts by magicat
    MD visit
Reply  


03/21/2008 21:55
DreamHorse
Purple Ribbon
Posts: 15
Member

Send a PM
Give a Hug
Hey there,

I hope you don't get too much bad news.....It sounds like you are pretty educated on bloodwork.....all my bloodwork came back extremely high and screamed Lupus....in a sense it does change your life but only if you let it....I was off meds for a long time and then had a bad flare up this fall and couldn't even walk...my new rhuem. put me back on meds and added prednisone which from this site you will see that everyone dreads that pill.....I have to say it has helped me alot and I luckily have not had any bad side affects yet and unlike most people have not gained alot of weight yet...It does make you extremely hungry but I have just used strong will to avoid over indulging.....I just got back to work and am feeling pretty good...don't let the diagnosis scare you....what helped me is that I just thought of it as a way to put a more self conscious effort into taking care of myself....I would say that with these illnesses you have to kindof KEEP YOURSELF HAPPY... if you love your job then definetly keep doing it but just try to rest WHENEVER you can....I have also started eating healthier and taking more vitamins....I am not dieting by any means I'm just trying to limit the junk.....One thing that helped me is that my doctor said EVERYONE IS DIFFERENT when it comes to Lupus....not everything is going to affect you the same as it has other people and not everything you read in books is going to happen to you......keep a notebook and write down every ailment every day and you will then begin to figure out what affects you the most.....anyways I hope you get good news at your next appointment....

Reply  


03/23/2008 21:33
magicat
Purple Ribbon
Posts: 4
New Member

Send a PM
Give a Hug
Thank you for the encouragement DreamHorse. You are right, everyone is different, and since I could do my job yesterday, I'm sure I will be able to do it tomorrow no matter what the news. A good thing about my job is that it does allow me to help people which helps me, and it is a part of happiness for me. I try to take care of myself too. I take a multivitamin every day and I am a vegetarian. I sometimes get anemic though. I don't know if that is because I don't eat meat or possibly Lupus. Well, I should know the whole story 4/8/08 when I see my doc again.

Magicat


Popular posts by magicat
    MD visit
Reply  



Start a New Discussion

Disclaimer: The information provided in MDJunction is not a replacement for medical diagnosis, treatment, or professional medical advice. Read more.
Contact Us | Bookmark Us | Add a Doctor | For Doctors | FAQ | Awareness Ribbons
About Us | Terms & Conditions | Privacy | Spread the Word | Advertise
Copyright (c) 2008 MDJunction.com All Rights Reserved