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03/18/2008 19:02
jwbrown430
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I was diagnosed with Lupus in January and have been on Prednisone steroids since then (as well as plenty of other meds). At first I thought the side effects weren't so bad, but then I stopped sleeping and was prescribed Ambien. Now I get sleep but during the day the steroids make me more jittery and unable to focus and kind of crazy... And now my face has become large and swollen - sometimes aches! Does anyone else have similar problems, how do you deal with them?

Jessica


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03/19/2008 04:30
BELLA
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I don't want to scare you, but predisone can cause huge problems

I have been on it for 13 years and now have steriod induced Cushing syndrome causing me have gained over 100lbs and have the buffalo hump it is not cool

I used to be a athlete and now am it constant pain and can barely move

I was never told this could happen....... only that I needed to take predisone to live, well I have news for the doctors this is not living it is hell

I would see if there is other meds you could take instead or if you must take the predisone take as little as possible for the shortest amount of time you can and do lot's of your own research

that is something that I could not do much of back then in 1995 But now with the all the imformation on the web you can access all the information you need

take care

Bella

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03/19/2008 11:17
mumeva
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I've been on prednisone for about 14 years. When I'm in a flare the doctor bumps me up to 60 mgs. I get the "moon" face and the "hump" when I go down to my usual amount of 5 the moon face and the hump go away. My doctor is trying to get me off because it can do alot of damage to the bones-skin-not to mention a host of other problems. There are alot of other medications you can take. Talk to your doctor about this so you can get off prednisone.

Wishing you well,

Eva

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03/27/2008 00:02
nothinggg
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before i dint take my prednisone when i was supposed to. i was fine i dint gain any weight my body looked fine and i dint lose my hair. i hate taking them i styll dont take them sometimes. i dont see the point im better off without it the only time they should give it to me is when im having a flare

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