I'm so confused (and new here)

Also did you notice that as time goes on, we get more ailments?? We notice that but SSD doesn't seem to count that as important. My heart goes out to those still in the process as it seems to break down many people. Then when you're approved, you may find your back pay goes to paying off bills and getting the medical appliances you so sorely need.

Good luck Eva and my thoughts and prayers are with you.

That whole vision problems also ring a bell for. I get ocular migraines. No pain, but, I get to watch pretty lights, kind of like a kaleidescope.I have always been greatful that I don't have a lot of pain with my lupus. But, its hard to convince some people that there are problems with no pain

Hi Ali, in addition to the light sensitivity that I have with my eyes, I don't get auras before the migraines. But the really painful migraines cause me to have extreme fireworks light shows in color on my eyelids when I close my eyes. I was reading that migraines are another symptom of lupus, but no doctor has ever asked me about that. I'm beginning to think that few doctors are fully informed of all the lupus symptoms, and that the patients are more fully informed.

I'm also sorry about the migraines that anyone has and I've had them for 20 years before 2006 when I was finally sent to the neurologist that has really helped me get out of pain. He has me take Topamax in the mornings and before bed every day as migraine preventation and then he does the occiptal neural blocks (sort of a head epidural) when the migraines become patternized to be daily for a long period of time.

Hugs to all.