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Lupus Online Support Group
A community of patients, family members and friends dedicated to dealing with Lupus, together.
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01/14/2008 17:32
emmalee25
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Posts: 9
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Hi all,

I am new to this group, not sure how to navigate around yet so please bear with me!

I was diagnosed with lupus 3.5 years ago and am feeling a bit lonely as i dont know anyone else who has it, so looking for some support and ongoing information.

Thanks

xx

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01/14/2008 17:35
oneloopykat
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Posts: 59
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Welcome to the group emmalee! Glad you found us...if you need any help or just have any questions feel free to message me (click on my picture and look for something that says send message...not sure exactly what it says lol). I look forward to getting to know you!

Have a beautiful day,

Kaitlan

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01/14/2008 17:37
oneloopykat
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Posts: 59
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Or there is a link right in the post that says send a PM...boy am I having some brain fog today!!

Kaitlan

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01/14/2008 17:45
mumeva
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Posts: 284
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Hi Emma,

Welcome to our support group. I will be 50 (yikes) this year. I've had lupus for about 15 years now. I take one day at a time. I have central nervous system lupus. I still see my rheumatologist once a month. She keeps me in check. How do you do with sun? I'm very sensitive to sun and fluroescent lights. I wear sunblock every single day (70 plus) even when its cloudy outside. There are alot of people on this sight that are very good to talk to. Talk to you soon

Lots of hugs,

Eva

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01/14/2008 17:52
fibroforever
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Posts: 898
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Welcome! Sorry to hear that you have Lupus. --- I was diagnosed many years ago, but now I guess my main thing is Fibro. You can check out my bio for more info.

You've come to the right place for support. Everyone one here is very caring, offering comfort and support.

There aren't a whole lot of people in the Lupus support group yet. But I'm optimisitic as more people learn about it, they will come.

If you have any other things going on, you might check out those support groups as well. I joined the Fibro, Lupus, Depression, and a couple of chronic pain support groups.

Once again welcome! Keep us informed on how you're doing, ask questions, share info, or vent if you want. We're all here together.

Take Care!

Amy

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown
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01/15/2008 11:03
emmalee25
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Posts: 9
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Hi ladies,

Thanks for the welcomes, its nice to feel part of the group, i think its hard for my family to really understand whats going on, so decided to look for support elsewhere.

Eva, the sun doesnt affect me too badly, but, then again, ive never been a sun worshiper, even though i live in the sunchine state i spend most of my time indoors or in the car!

good job i dont like sunbathing huh???

xx

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