I am new to your MB and have had an autoimmune disorder for many years. Now they tell me its lupus...I am really going through a rough time ifof it right now..it seems i have been in one constant flare now for weeks. I think I am going to lose it. but it is nice to maybe talk with other people who know what I am going through. I have decided to fight this as best as I can, I really want my life back..

Thankyou for letting me vent.

TNT

I know what your going through. I was diagnosed with lupus in 1993 when I was 35. At that time it was just skin lupus. In 2001 it started going into my nervous system. I have been almost in a constant flare since 2005. I actually have peripheral and nervous system lupus which caused me in August 2007 to have a brain hemorraghe. Sometimes its hard just to get out of bed but I still put a smile on my face and keep going. There are times I want to throw in the towel but with support from family and friends and from the Lord above we just keep on going. Just try to stay focused-eat right try to exercise (just walk 20 to 30 minutes a day) you'll get through this. Any time you feel like talking please feel free to email me.

Hugs,

Mumeva (Eva)

Ali

Thankyou..it has been hard not knowing exactly whats wrong..they knew I was sick but its been a long road. To many surgerys and med's...right now I hurt so bad, it feels like a baseball bat has been beating me all over my body..UGH! Finally asked for something for the pain. I normally try to tough it out but just can't any longer..Thankyou again TNT

I feel your pain!!!! Really!!!! It took me over 5 years to get diagnosed with Lupus. I thought I must be going insane or some type of hyprocondriac. I to am new to this group. I am not very computer wise so I don't know exactly how it all works. I understand your flare-ups (they hurt like hell), I understand feeling so tierd you can't do anything but sleep. It sucks when your in a major flare. I am taking Plaquinel now. Have been for amost a year. It has helped a lot with my joints swelling and hurting, and with the rashes. Please feel free to e-mail me at krsgrill@hotmail.com to discuss anything. We may be able to help each other.

65mustang

Welcome to the group! It really does help to talk to someone who knows what you're going through. I am in the middle of a flare also so hopefully we will both be feeling better soon. Glad you found us!

Kaitlan

Its hard to go through this isn't it?? I am glad I found this group. So far everyone has been wonderful and it helps to know I am not alone in htis struggle. Thankyou..Hopefully we both will get through this flare quickly.

Tam

Well it is 7:30 am here and I haven't really had any sleep. I am just hurting too bad to even lie down...just the pressure of the blankets was too much for me to handle last night. My eyes are soo tired so I think I am going to try and lay on the couch maybe I will be able to fall asleep. I am just hoping that these people who said they might drop by won't. Is it too rude to leave a note on the door asking that no one knock on the door? I don't have any way to let these people know that I am not feeling well. I don't want to come off rude but if I'm sleeping I need to sleep...what do you guys think?

Kaitlan

You need rest!! That comes first...I couldn't sleep either. Wish I would known you were up and maybe we could of chatted..

I understand about worring how people think you are being rude but if they are your friends they will understand that you are unwell and sometimes we need to have extra care, just leave the note..Its ok!

I have been in so much pain and I think I am going crazy. They put me on Tramadol (Ultram) and good lord I itch!! Now I hurt and itch... No sleep for me. I just want a break from this. Its been two and half months of constant hell. Pneumonia and then pleurisy, and now my glands are huge all over my body..have you ever had that? It all started when I had pancreatitis, got stuck in the hospital then got viral pneumonia and etc. I didn't even know my pancreatitis is because of the lupus. Not until this week.. Been fighting this for a year off and on..UGH I go back to the Doc. on friday. I don't like him but have no other choice. Wish I had a good Doc. again

Please contact me anytime

My email address is tandtcs@yahoo.com or we can chat on yahoo messenger. OK?

TNT

Tam

im new here too, i started to flare yesterday, usually my flares only last 7-10 days, so fingers crossed this is a quick one too. Hope to get to know you better and we can all chat and keep each other going.

take care

Em x