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"Lupus Awareness" (kam123)

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Lupus Community Lupus Support Forums Introductions & Personal Stories New to the group and my wife has Lupus
New to the group and my wife has Lupus
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01/03/2008 07:19
hotrod03le
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 Hello...My name is Mark. My wife and I live in central Texas. We met in April of 03, married in August of 03 and she was diagnosed with systemic Lupus in August of 05. Needless to say it has been a nightmare since. I have been reading some of the posts and my heartfelt sympathy's go out to you all. Not only does she have the Lupus but she has the fibra, ruhmetoid, rsd, sjogrens, hashimoto's thyroid. I apologize on the spelling. She has had a neuro stimulator implanted in her back due to facet joint disease. She will be 40 January 11th. After reading some of the posts, I have realized that she has the insomnia, for days at times, the full body core aching and the lupus cerebritis. My living room has turned into an assisted living center, so to speak, and we have not slept in the same bed in months. I am here to learn and understand and support her the best way I can. I am afraid that I am losing her to this illness.

Mark
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01/03/2008 12:32
oneloopykat
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 Welcome to the group Mark! I'm sorry to hear about your wife but I applaud you for seeking out support. My story is somewhat similar to yours. I started getting sick right around the time I met David five years ago. I progressively got worse and it turned out after countless tests and such that I had SLE (and all the other fun things that go along with it like sjogrens etc.). Since we had only been dating a short time when I got my diagnosis I gave David countless "outs". I thought that a great guy like him deserved to be with someone healthy that could live life with him. Well he wouldn't hear any of it (although there are days I'm sure that he wishes he had taken me up on it lol). That was 5 years ago and although we aren't married (I would loose my insurance policy...long story on that one) we might as well be. He would be the first to tell you to just live life day by day. I know it can be frustrating when there is nothing you can do for her but just the fact that you are seeking out support is huge! Sorry to drone on like this. Again welcome to the group and let me know if there is anything I can help with!

Wishing you a beautiful day,

Kaitlan
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01/03/2008 13:23
hotrod03le
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 Thanks Kaitlan...It means a lot. She stresses about the same thing, that I didn't "sign on" for this and that I would be better off with some one healthy but I fell in love with her and I'm going to stay by her side through her, our, battle with this. Thanks again.

Mark
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01/03/2008 13:39
oneloopykat
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 Mark,

I know how she feels. I feel guilty for "dragging him into this" but I also have to realize that if he didn't want to be here he wouldn't be here. Having a loving partner who is there for you makes a HUGE difference in our lives. Just having someone to hold your hand and tell you it will be alright makes a world of difference. Thank you for being there for her!

Have a beautiful day,

Kaitlan
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01/04/2008 14:19
mumeva
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 Hi Mark,

So sorry to hear that your wife has lupus. I was diagnosed with SLE when I was 35 and I'm going to be 50 (yikes) this year. My husband of (30 years this year) has been along for the lupus ride every needle-hospital stay doctor visit you name it and how lucky I am that he supports me 100%. I'm sure it has been a nightmare but its both your nightmares not just yours or hers. She's lucky to have you.

God Bless you both

Eva
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01/07/2008 04:09
hotrod03le
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 ^Thanks Eva for your support. It's much appreciated.

Mark
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