Lupus Support Group

Hi,

My name is Eva and I've had lupus for about 14 years. I am very sensitive to the sun and lights and now I have central and pheripheral nervous system lupus. In August of this year I had a brain hemrraghe that the neurologist said was the result from the lupus. So now I am taking two different types of immunosuppresants along with a host of other meds. I just saw my rehumatologist yesterday and she added two more meds to the list Its been quite a struggle for me since my brain (exploded). I just started to read and use the computer again, but I still can't comprehend things and I now struggle to spell correctly (spelling was always my strong point) and I can't remember things that happened minutes, hours, days ago. The one good thing thats happening to me next year I will be a grandma for the first time. I will also be 50 (yikes) next year. Hope to hear from everyone soon.

Eva

We're glad to have you in the group Eva! I know I'm slow on the ball welcoming you (but since we have talked in a few other threads I'm hoping you will forgive the oversight) Congrats on being a future grandma!! Don't forget to tell your other "lupie" friends about our group we can never have enough friends!

Have a beautiful day!

Kaitlan

I have the central and perpherial system nervous system lupus too. I have had a stroke thanks to lupus. I have nerve damage and muscle damage from it too. It is a constant struggle. Not remembering things that happedned 5 minuutes agao, or winning a game of checkers with my daughter cause my concentrantion isn't there.