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10/20/2008 13:48
Momof2boyz
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 Hi I am a 39 year old female diagnosed with lupus 10 years, I have really been having a hard time dealing and accepting the fact that i have lupus and what it has done to my body physically and mentally. So if anyone can help me adjust that would be awesome.
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10/20/2008 14:42
mumeva
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 After 15 years of this illness I still have days where I cry and have a hard time. My body has completey changed since this disease struck and I hate looking at somedays. The one thing my husband doesn't do is make comments about it he still loves me the way I am. As a teenager and early 20's I was pretty thin and now I weigh quite abit. I try to exercise but there are days where my body hurts so much and just not feeling well that I can't. Its a big adjustment finding out you have an illness not just for you but for your family members. I really try to keep a cheerful attitude and not let this illness get the better of me. You will find alot of support here and alot of wonderful people. There are alot of us here that have stories to share so please keep us informed of how your doing. Take Care.
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10/20/2008 15:48
minerram
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 Would you say that the lupus is draining you mentally or is it mainly the effects of the medicine you may be taking or both? I have heard that lupus has a great deal of physical effects and the medication can make you feel better and sometimes worse. How has this effected your daily routines?

Popular posts by minerram
    lupus cerbritis
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10/20/2008 23:32
fibroforever
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 Accepting any type of long-term illness can be quite challenging. The only thing that's been helping me accept and learn to cope with what I've been given, is to see a councelor. He helps me with the physical and emotional pain barriers that get in my way.

I guess what I'm trying to say is- don't be afraid to ask for help in trying to deal with this situation.

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown
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10/21/2008 15:38
Momof2boyz
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 I think it may be a little of both I really have not found time nor do i want to, to tell myself this is real. I know i should have adjusted by now it has been 10 years but I just cannot handle it all. I have become very forgetful and talk slower and can fall asleep talking to you in the middle of a conversation. But the doctors tell me this is all normal this is what i do not get. If it is normal why does it feel so wrong...
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10/21/2008 15:44
Momof2boyz
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 Thank you so much, I cannot believe the hugs and response I have gotten. It helps just reading everyones stories, just knowing that all the things that i have felt for ten years is not in my head, that there are other people out there that really and i mean really understand what i feel. And just because i look ok really does not mean that i am ok. My husband thinks that because i look ok i am ok. it is very frustrating. But I push myself over and over again to make him and my kids happy and end up in bed for a week afterwards. But at least i know now i am not the only one.
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