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Lupus Community Lupus Support Forums Introductions & Personal Stories my intro....in a nutshell
my intro....in a nutshell
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11/22/2007 03:08
NoodleMom10
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 I was diagnosed two weeks ago with SLE. My symptoms are mainly muscle and joint affected. I am mostly bedridden and definitely housebound unless we go to Walmart and I can use a cart to tool around in. My Hubby says he needs to make me a sign to put on my back saying "Student Driver". I have almost knocked over only four shelves.

I have trouble with mental clarity. I cannot open a water bottle and if I step outside I get stuck out there because I cannot open the door.

So thats my intro in a nutshell

Kasey wife to my HubbyMan and Mom to my ten kiddoes
LuvBug 25, BooBear 23, FroggyGirl 19, Butterfly 16,
GuitarMan 15, LittleMiss 13, LittleMan 13,
BrainyBoy 11, Skooch 8
and my sweet Beanie in Heaven
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11/27/2007 06:40
Eliza
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 What medications are you taking for SLE? I am taking Predisone and Plaquenil. I hate the side effects!

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11/29/2007 18:23
bspears
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 I am so sorry for your pain. I understand it and have lived through it. When I started plaquinil, I was in the same boat you are in. After tthree or four months and getting ten hours of sleep at night, life got better. I also took nonprescription naproxen sodium for pain. I highly recommend getting to a university hospital. That is where the best of the best are.
With peace and Hope,

Beth
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11/29/2007 18:26
bspears
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 Hi,

I know the side effects are scary, but trust me, the quality of life is much better and you owe that to your family. Plaquinil is side effect free after a couple of weeks. The nausea goes away. Steroids are a different story. I have been on them for 3 years, daily. I am not getting off and starting a stronger medication, Imuran to continue treatment. However, the steroids work well, and have kept me going for several years. It's only weight gain and that is not near as important as being able to be with loved ones and live our lives.

With peace and Hope,

Beth
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11/29/2007 18:44
NoodleMom10
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 I cannot take steroids. I am on Lyrica and Celebrex and Naproxin.
Kasey wife to my HubbyMan and Mom to my ten kiddoes
LuvBug 25, BooBear 23, FroggyGirl 19, Butterfly 16,
GuitarMan 15, LittleMiss 13, LittleMan 13,
BrainyBoy 11, Skooch 8
and my sweet Beanie in Heaven
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11/29/2007 18:58
bspears
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 I have taken all three of those. I'm glad you aren't on steroids. The Lyrica helped me , but I was told that it takes a couple of weeks for it to really help. I was on celebrex, but the Dr at the university recommended just try to naproxen without the celebrex. But, it took both for me to get back up and running. The Plaquinil was the first 'lupus' medicine he put me one and it really, really help. You might ask the doctor about that. Let me know if I can help in anyway.
With peace and Hope,

Beth
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