ssmith4359
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As I have been in Florida since 1987, and the lupus diagnosed in 2001, I don't have anything to compare my lupus symptoms vs. hot/humid. However, the Myasthenia Gravis, which is a chronic incurable (and rare 20/100,000) neuromuscular disease is affected by extreme temperatures--both hot and cold. The heat here in FL is murder. You would think I'm tanned, but I am not. I look like Casper the ghost! I refer to it as my "moon tan." The heat from the sun and air predisposes me to an MG crisis...respiratory arrest. I don't notice any difference in temps with the lupus, but that's probably because the Osteoarthritis is affected by the colder and humid temps we are now having down here. Do you take Neurontin for your neuropathy? I also have spinal cord compression in three areas, severe degenerative disk disease and annular bulges; oh, and scoliosis. Some of my neuropathy is due to nerve compression in my neck and the rest is my back. My doctors tell me I have the spine of an 80-yo woman; and they told me that the first time when I was 37. My maternal side of family has Multiple Epiphyseal Dysplasia...a bone disease that includes bone tumors, often requiring hip replacements. So far, I've avoided THAT surgery. I've had 16 major ops. Don't care to go through another one. Is it really cold where you are now and how does that affect your system? Thanks, Jen, for responding. I feel like I can step out of the shadows now. Lynne Lynne
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