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"When I was diagnosed I was scared didn't know what to do or where to go..I started reserching bipolar and somehow ended up here at MD....Again scared but needing to know what was in store I asked a question..WOW the people who care..I know I would be lost now if I did not join..made many friends and they have helped me through thick and thin. and never judged...........XX Thank you MD and all.Love all of you.......Laurie Pachin" (puppylover)
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Lupus Online Support Group
A community of patients, family members and friends dedicated to dealing with Lupus, together.
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08/24/2008 10:34
katalypso
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Posts: 2
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[size=4][/size][b][i]My name is Kathy and I am so glad to have found this support group. I hope I can be of help to some with my experiences and that you will be able to help me as well. I am looking forward to getting to know you all and will do whatever I can to be an active and helpful member of the group. Thank you for being here when I was searching for support. I wish for all, pain free days and sleep filled nights!
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08/24/2008 14:17
mumeva
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Posts: 284
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Hi,

I was reading your profile and I turned 50 this year. I have central nervous sytstem lupus vasculitis. It will be a year tomorrow that I had my first brain hemorrhage and I had my second one January of this year. I was sent to a neurologist and a neurosurgeon who along with my rheumatologist said it was due to my lupus. I also get the brain fog and of course vertigo and the horrible lupus headaches which I got this past Friday Ugh!!. You will find alot of great support on this site along with great people. Take Care,

Eva

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08/24/2008 17:36
papillon8
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Hi Kathy - I'm a new member as well. I have had SLE for about 17 years, so it would appear that I would this illness handled but it manages to surprise me continuously. I hope that this support group can help me get through those surprises and that I in turn can support anyone through their rough times. I would love to share the good stuff too!

Keep smiling!


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08/25/2008 21:30
redhairali
Posts: 92
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There are a lot of nice people here. I was diagnosed almost 30 years ago. (Man, am I getting old) It has only been in the last 8 or 9 years that I have had problems. I hope you post often.

Ali

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08/31/2008 07:08
katalypso
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Thanks for all the warm welcomes! I look forward to chatting with you all, comparing notes and helping one another get through this illness with as much grace as we can muster. I personally know no one else with Lupus and most of my friends are just confused by the changes I am going through. My very best friend who would have stood by my side regardless died suddenly right before I was diagnosed so I cannot tell you how much your friendship and support mean to me.

Kathy

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