Lupus Support Group

Hi, sorry I am late, Welcome to the group. I feel overwhelmed by your post. I am 34 as well and had a battle with my kidneys, but God walked me through it. I am sorry about your loss, how is your child coping? I send you all much hugs and gentle cheek kisses...

Thanks for your kind words. My daughter is coping better than I thought. She just became a teenager and it seems to be that she is worried about me leaving her also (passing away). She calls me all day from school to make sure I am ok. I tell her she needs to concentrate on class and that daddy is feeling ok. I think we are closer than ever now. Always remember you have lupus but it doesn't have you. I would always tell my wife that. Continue to endure........no matter what.

Hi and welcome to the group. I'm sorry to hear of your loss; it is always a shock to imagine that lupus could be fatal in this modern day of advanced medicine. I pray that you and your daughter are coping well. I know that being among like-minded lupus sufferers on this forum that I have found friendship and relief from the stress of lupus. I pray that God will keep you and your daughter safe. Marie.

Welcome to our group. I'm sure I held my breath for quite a long time; we spend a lot of time encouraging one another in dealing with Lupus; it's heartbreaking to hear of losing a fellow Lupus sister. I am so sorry for your loss; I know you have heard that a lot, but I pray that you will receive some comfort, you and your brave daughter. I felt like you were talking about me; I have been blessed not to have any major organ damage; and I thank God for that. Today I celebrate the life of your wife-your soul mate, and I pledge to live life to the fullest, love hard, and laugh until I can't laugh anymore.

Post as much as you want. You are in my thoughts.

Tawaii

how r u and your daughter doing if you ever need to talk just pm me hope u two r well

Melissa

I have just read your story, and let me tell you I wish my husband would read this...He doesn't get it... I am sorry for your lost, and send my many blessings and prayers for you and your family... My status has just changed also with lupus, and sometimes it just sneaks up on us...One day I think those who have taken us all for granted, will appreciate us when we are not here...take care

Hello everyone, sorry I have not posted anything in so long. I am trying to get being a single parent together. I am still coping with my wifes passing and get my self prepared for my daughter going into high school this coming school year. So between those things I stay busy. I hope everyone is doing well. I try to remain positve and always be thankful for another day of life because it is precious. Please keep in touch and thanks for your kind words. I will try to keep in touch as much as I can. I want to keep my wifes memory alive.

i am so sorry to hear about your wife passing away. i believe in the remark you said is so very true life is so short and you never no when it's your turn to go only god knows. i was just diagnosed with lupus and i am so scared. my husbund and i have a 3 year old daughter together. i hope i beat this i know it's going to be hard but i want to beat it i have a husbund and a daughter that needs me. i hope your daughter is holding up ok i know it has to be hard on her. take care,

sassy123

I am so so sorry for your loss. This has to be such a hard time for you and your daughter...I cannot even imagine.

Your story really hit me hard as I am a 33 yr old mother of four children (ages 7-16). I was just diagnosed last month with Lupus and it just made me realize just how serious having Lupus really is. I have always worried about what my children would do if anything ever happened to me, but I never really thought this was anything to seriously be concerned about. That is until I read your story. It really hit home with me

I know this has to be a difficult time for you. Feel free to PM me if you ever need or want to talk. I will keep you and your daughter in my thoughts and prayers.

Just know that your wife is now in God's hands and is no longer suffering and I am sure she is watching over you everyday.

Thinking of you and your daughter. I hope you can find the strength you need to continue on. I have found this group very encouraging and easy to share both disappointments and successes with. Take care.