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mobey"MDJunction has become a lifeline to my recovery. I use this site as a daily coping tool where i can share my thoughts,my fears and ask ways to cope with living life with a illness. I also found new friends here and they have restore my faith in humanity. People everywhere come here to share same problems or solutions to problems we encounter in our lives. MDjunction is a wonderful site and has help not only myself but also my family and friends. I recommend this site to anyone who thinks they are alone dealing with an illness and also to those who have love ones who suffer from illnesses. I will keep spreading the word about MDJunction to organizations who deals with illnesses that would benefit having MDjunction as a support system.Bottom line is.. I found myself again through MDJunction" (mobey)

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Lupus Online Support Group
A community of patients, family members and friends dedicated to dealing with Lupus, together.
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03/08/2010 08:18 AM
shayshay820
 
Posts: 3
New Member

Hello. My name is Shayana Griffin and I am 17 years old. I was diagnosed with lupus when i was 13 years of age. It's very difficult to deal with because of the pain and extreme fatigue. It's hard to go to school too. Sometimes my hands and toes swell up. I got these little dark marks on my face and now i think i have psoriasis. I can't be in the sun unless i wear a lot of sunblock. I take about 13 different medications everyday...Dizzy
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03/08/2010 08:22 AM  Top
breezyhope
breezyhope
 
Posts: 596
Member

hi and welcome to the group shayana!! wendy

03/08/2010 08:31 AM  Top
shayshay820
 
Posts: 3
New Member

Thank you for welcoming me....it feels good to be around ppl who have experienced what i have been through.Smile

03/08/2010 10:06 AM  Top
redhairali
redhairali
 
Posts: 3400
Group Leader

Hi Shayana and welcome to the group. The people ere are wonderful. I hope you visit often.

Alison


Previous discussions I participated in:
Hi, new here
Raptor Cam
Raptor Cam

03/08/2010 10:16 AM  Top
Looopie
Posts: 1867
Senior Member

Hi and welcome to the group. We are a great support group. Hope to see you often on the forum.

Marie


03/08/2010 03:05 PM  Top
jackie13
jackie13
 
Posts: 144
Member

Hi and welcome... hope to see you here often... plus you are very young well I am 20 so I can relate to having this disease at a young age.. But I didn't get it until I was 18 so I had already graduated but I was in the college so I know its hard.

Previous discussions I participated in:
Falling
Riding carts at the stores
Good Bye

03/08/2010 06:56 PM  Top
mumeva
mumeva
 
Posts: 5494
Group Leader
I'm an Advocate

Hi Shayana......welcome to this fantastic support site, you will meet some wonderful and caring people who know what it's like to live with a chronic illness on a daily basis. So sorry that you have this horrible disease but with proper treatment and taking good care of yourself hopefully you won't have a hard time managing this illness. Anytime you need to chat, vent, cry or just to share or ask questions someone will always be on here or you can PM any of us at anytime. Wishing you well

Eva

I long to dwell in your tent forever and take refuge under the shelter of your wings: Psalms 61:4

Previous discussions I participated in:
Still Here & Kelly Update
Hi, new here
Falling

03/09/2010 09:07 AM  Top
Bunnyhugger75
Bunnyhugger75
 
Posts: 2019
Senior Member

Hello Shayana and welcome to the group. I am so sorry to hear you have had to go through so much with lupus at such a young age. I hope that you have a good rheumy and are on a treatment plan to get you better. Please post here often!

Take Care,

Amy

Diagnosed with Lupus in 2002. 36 yr old On: Plaquenil 2x a day, Cellcept 500mg 2x a day,Lasix 40mg 1xday, Prednisone 9 mg, Folic Acid 1mg, Vit D, Prilosec, Effexor 50mg 2x a day, Ativan 4 mg a day, DHEA, Methadone 2xday, Dilaudid 4mg, compazine, Imitrex, Doxepin,phenegran all as needed (prn).

Other diseases: Adrenal Insufficiency, Endometriosis, Crohn's Disease, Gastritis, Postherpetic Neuralgia, Raynauds, Sjogrens, chronic anemia, costochondritis, fibromyalgia.

Previous discussions I participated in:
Still Here & Kelly Update
Hi, new here
massage therapy
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