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02/28/2010 09:15 AM
jujubeee
jujubeee
 
Posts: 6
New Member

Glad u guys r here! Recently dx'd with SLE. Don't know if any organ involvement yet, don't think so...some kidney problems but nothing serious..? Looking forward to learning about SLE. Thanks to all of you!

Had bad horrid rashes for about 7 years that got progressively worse, had many SLE symptoms...biopsied Jan 2010 and lupus panel. Results SCREAMED SLE. On 400mg plaquenil daily and right now 20mg prednisone till plaquenil kicks in.

Starting to exp. hair loss (bald spots) and some lupus fog! Yuk. Rashes improving w prednisone. Exp. rapid heartbeat (after eating?)joint pain...but feeling better.

"The heart is the real fountain of youth".
- Mark Twain, Notebook, 1898
Reply

02/28/2010 10:15 AM  Top
Bunnyhugger75
Bunnyhugger75
 
Posts: 2019
Senior Member

Welcome to this wonderful group. You will find so much friendship and empathy here. I'm glad you finally got the right diagnosis and are on a treatment plan to feel better. I get a rapid heart beat from the prednisone, it is a common side effect but you should still let your doctor know. Joint pain is very common and can be one of the most painful parts of SLE. You should let your doc know if you need something for the pain. I have been in a bad flare for the past few months and I take percocet for the pain. Fatigue is also very common. I'm exhausted all the time during a flare. I hope you continue to feel better.

Take Care,

Amy

Diagnosed with Lupus in 2002. 36 yr old On: Plaquenil 2x a day, Cellcept 500mg 2x a day,Lasix 40mg 1xday, Prednisone 9 mg, Folic Acid 1mg, Vit D, Prilosec, Effexor 50mg 2x a day, Ativan 4 mg a day, DHEA, Methadone 2xday, Dilaudid 4mg, compazine, Imitrex, Doxepin,phenegran all as needed (prn).

Other diseases: Adrenal Insufficiency, Endometriosis, Crohn's Disease, Gastritis, Postherpetic Neuralgia, Raynauds, Sjogrens, chronic anemia, costochondritis, fibromyalgia.

Previous discussions I participated in:
Lupus affecting my liver
New to Lupus group
Anemic

02/28/2010 10:45 AM  Top
Looopie
Posts: 1864
Senior Member

HI and welcome to the group. I'm sorry to hear that you have SLE. I think kidney involvement is a serious complication of lupus, but I'm glad that your doctor has decided to biopsy and given you active treatment. I'm glad that your rashes have responded with prednisone. Perhaps you could see the cardiologist about the rapid heart beat. I wish you well, and hope that your lupus will respond to the new medications.

Take care.

Marie.


Previous discussions I participated in:
Lupus affecting my liver
hi from Slada
Helloooooo

02/28/2010 11:32 AM  Top
Gen

Hello,

Welcome to a great support group. Feel free to post or just read.

Gen


02/28/2010 12:57 PM  Top
redhairali
redhairali
 
Posts: 3394
Group Leader

Welcome to our group. The people here are really caring and supportive. It helps so much to be able to talk to other people that can understand what you are going through. I hope you post often.

Alison


02/28/2010 01:56 PM  Top
MissStacey
MissStacey
 
Posts: 14847
VIP Member
I'm an Advocate

WelcomeGroup
I suffer from Rapid Progressive MS, Lupus, Fibromyalgia, Epilepsy, Migraines, Neuropathy, IBS, Narcolepsy, Arrythmia, Arthritis and too much more complete list on profile.

"Just because we have the right to disagree with a person, does NOT give us the right to disrespect that person."

I'm not currently active due to many personal and medical issues. I will not be participating in MDJ for awhile, my thoughts and prayers are with everyone. I hope everyone is well and I appreciate all of the thoughts, kind words and messages. I have tried to respond as much as possible and apologize if I have not gotten back to everyone. Love & Hugs, Stacey

02/28/2010 02:22 PM  Top
breezyhope
breezyhope
 
Posts: 596
Member

hi and welcome to the group jujubeee!

Previous discussions I participated in:
Doctor Visit Today
Being Believed
New to Lupus group

03/01/2010 09:43 AM  Top
mumeva
mumeva
 
Posts: 5491
Group Leader
I'm an Advocate

Hi and welcome to this great group jujubeee.....you will find some wonderful and caring people here who know what it's like to live with a chronic illness on a daily basis. Anytime you need to vent, cry,share or ask questions please feel free someone is usually on or you can PM any of us at anytime. Wishing you well

Eva

I long to dwell in your tent forever and take refuge under the shelter of your wings: Psalms 61:4

Previous discussions I participated in:
hi from Slada
Three kids and a dog
Helloooooo
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