Lupus Support Group

Hi everbody

I am new to this group and thought I would join up for abit of extra support. I am 25, divorced (couldn't hack the Lupus) and live in Australia.

Have been diagnosed for 4 years. Having a pretty rough time at the moment. Joints and Kidneys on the war path and the summer sun here means I cant go outside between the hours of 9am and 4pm, even all covered up, or my skin peels off.

So feeling pretty sad and sorry for myself. Self pity is an ugly thing, but watching people go for runs along the beach with their dogs and knowing I can't go outside let alone run is pretty crap.

Just find it really challenging because none of my "friends" really get it. I wish they did so I wouldn't feel so alone.

So thats my sob story for the day! Sorry to be such a wet blanket, lovely to meet you all and at least I can still type!

tenni,

Welcome to the group. This is a great support group. Its hard to watch other people have a "normal" life . But it does get better. We learn different "normal" to us.

Feel free to vent, I did a little while ago. Ask questions.

Once again welcome to the group!!!

Gen

Hi and welcome to the group. The people here are great. Lupus can be very different for each person. But, we all understand what you are going through. It helps so much to have a place like this to go to. I hope you visit often.

Alison

Hi Teeni and welcome to the group. I am sorry to hear that you have lupus but glad that you have joined our group. Don't you feel jealous looking at people swimming at the beach, or playing outdoor sports? We lupies understand lupus very well, so please feel free to whine and vent at this website. Wow, you can type - I'm so jealous!!

Take care

Marie

Hi Teeni.....glad you found us. You can whine and vent to us when ever you need to. Or have a pity party and I'll come.....I even bring cheese. I live near the beach so know how you feel about that subject. I hope things get better for you.

Ill bring the whine.. i mean the wine lol

Welcome Teeni, I'm glad you found this group. It is hard to see what seems like everyone else doing all the things we can't. That gets me down too. Coming here and talking about it helps me through those times. I hope you post often.

Take Care,

Amy

Hi Teeni welcome to this great support site. It must be difficult not being able to enjoy the outdoors meanwhile your friends are out their having a good ole time. I know that feeling I am in the same boat as you and pretty much most of us here are. I have days where I have a pity party but its usually by myself. Lupus is such a hard disease to live with but ya do. For me I have had it for 16 years and I still have days where its good and bad......I am a pretty positive person so I try not to let it get to me every once in a great while I go outside in the evening and have my cry. Actually I think during the summer time the evening is the best with all the crickets and frogs croaking and the beautiful sunsets......were all here for you anytime you need to vent, cry or just to share and you can always PM any of us at anytime. Wishing you well.

Eva