Lupus Support Group

Hi I don't knw how to get the support I need, I have been in the hospital 3 times this summer and 4 times in the last 6 months. Now I feel more deppressed lie I am a burden to my family, They are afraid of loosing me and I feel as if I am dieing of a slow death. If I can't calm my stres level things are not going to improve. I don't know how to cal my stress. I hav always been a fighter and now I am not sure. Well I see my RA in a couple of hours I hope I get answers, I don't like feeling this way.

Thanks

Angle

Angle,

Please read my post that starts out "I was 54 when I was diagnosed." My RA didn't like my choice and has continued to say that my good results are not credible, but I wouldn't trade what I'm doing now to go to drug therapy that he wanted me on.

Angel, I know it is hard and totally understand where you are coming from. How do you relief the stress when you have to live through it everyday? I don't know the answer to that. Just remember that it will get better, just keep pushing through. You have to have a storm to enjoy the sunshine. You are being tested by they universe. Fight your way through. I know it gets rough and feels like you are loosing but every day you fight you are one more step to winning. Just talk to yourself and tell yourself how strong you are. What is going on with you? hospital visits?

Hi, lupus can be hard on all of us. And each treatment will be different. You need to have a doc to that really listen to you. You can always find support here. Just remember. what works for one person may not work for another.

Alison

Maybe you need a second opinion. The chest pains may be from anxiety and easily addressed. And you sound depressed. Anyone with a chronic disease has the right to be depressed....another problem easily addressed. You mentioned chest pains. Do you have a good cardiologist? I think a key to successfully handling lupus is to put together a team of physicians who will communicate and work together to your benefit.

Come here anytime to vent.

Post edited by: heidiclouser, at: 09/29/2009 05:38 PM

Hi and welcome to this great support site and yes you will get a tremendous amount of support from people who really care and listen well.

Its very difficult to learn that we have a chronic illness and than to tell our family members.....that is hard so that is where we come in....anytime you need to vent, cry or just to share a doctors appointment or just how your day went we will listen and someone is always on this site.....be good to yourself..

Eva

Hi Angle -

i am sorry you are going through a tough time. I know how it feels to not be able to muster the energy to be positive. Again. But that is ok and it is completely normal. We all know how you are feeling and feel free to vent all you want here. we're here for you!