AuntMimi
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One good way to get your husband or other members of your family to understand is to attend a lupus support group. There, he can meet with others like you, hear their stories of how debilitating this disease can be and maybe catch on. Besides that, I've told family and friends to imagine they have a chronic case of the flu, something most perople can relate to. Remember how tired it made you? Well, that's how it feels to have lupus, even though I take medicine for it. I hope you can get some kind of answers here and at a local lupus support group. I have also written a book about lupus, available on Amazon.com. It's Diagnosis: Lupus: The Intimate Jornal of a Lupus Patient. In the book, I speak to the agony of having to hear people say, "But you don't LOOK sick~!" And we all have heard comments like that from people who mean well, but don't have a clue. Good luck. Marilyn (Aunt Mimi) Marilyn |
"I have been struggling with Fibromyalgia, Bipolar, Anxiety, Post traumatic Syndrome for quite some time and pretty much going it alone. I stumbled across MDJunction by accident. I stayed in the shadows and just watched for four days and then I joined, feeling relieved and excited to have found a safe place with alot of folks that I could relate to . It's proove to be medically and emotionally
