Lupus Support Group

Hi everyone,

Went and got a copy of my newest blood test results taken a week ago.

The SLE Comprehensive Diagnosis Panel is back ANA is up from 1:320 Homogeneous Postitive to 1:640 Homogeneous Positive. My RNP Antibody is Positive at 3.5 normal is less than 1.0 other than that everything is normal. Rheumatoid Factor Diagnonostic Panel Comprehensive is all Normal Cannot see the specialist until the 6th of July 2 weeks from today thank goodness..

Any help with blood test would be greatly appreciated.

I hope everyone is going well...

Hugs, Michele

I'm not very good with the blood tests. When I was first diagnosed in 1996 my ana was negative so in May my rheumy had ordered another ana test along with others just to see if it is now positive but I haven't heard a word from her which is very unlike her, I'm wondering if she even got them. I see my rheumy tomorrow so will talk to her about them. I know other people on this site will be able to help you. At least your appointment isn't too far away. Hope you get answers.

Eva

Thank you so much...The Sjorgens Antibodys were all normal too.. Thyroid is all good still...Good luck tomorrow with your appt. please keep us posted..

I know with me alot of my tests were normal back in 1996 but still was feeling wrotten and since that time my lupus has gotten worse so it could be that my ana is positive at this point. It is annoying though that tests come back normal but ya feel so bad.

I will keep you informed of my appt. tomorrow.

Eva

Isn't that frustrating...I still feel frustrated that how can I be this sick and nothing is wrong with my tests all the time except that I am almost always slightly anemic....Its crazy to me....But my doctors have told me that the meds I take can affect the results and it can also take 10 yrs before the lupus will show itself....I know it might sound bad but I would actually like to see it show up, then I would feel like see I really am sick...Even though its obvious my drs. believe it, it would just be that much more proof.

P.S...I Definitely would like to hear how your appointment goes Eva Good Luck!

Well my rheumy and I decided to try Cytoxan. She is sending a letter to the oncologist office here in town. She thinks that if she starts off by doing 1 dose of 800mgs. of IV infusion to see how I do on it and if I do well she will have this done probably 3 to 4 times a year there again depending how well I tolerate this medicine. She said if this goes well I could go off of prednisone...yippie!!!! Right now the only meds I am on is prednisone, the others were causing me problems, so now I have to be careful regarding infections and especially when I start the Cytoxan. This was our last medication to try I think I have been on every one they have. Its either I become allergic to it or it starts affecting my liver....so my hopes are high with Cytoxan. She said that she has had good results from this. My problem is that I don't have a good PCP here in town if I were to get an infection.....my rheumy is two hours away from here so now I am on a hunt for a PCP....I guess that starts tomorrow

Wishing you well Kelly,

Eva

Hi Eva,

I am sure you will be so happy if you get to go off the Prednisone...I am praying for your girl..

Yes you do have to be so very careful of infection..I just went through trying to find a PCP here in Oklahoma..I found a nice doctor..I hope he is just as capable as he is nice..

You will find one I am sure.. by the way that your little one in the picture is so darn cute.. Thank you for keeping me posted I have thought about you today and wondering how you were doing..

Hugs, Michele

Thanks Michele, and yes I think she is a cutie too. My daughter and her husband are trying to get permanant custody of her......she is my son-in-law's daughter from a previous relationship he had and the living situation she was in was horrendous.....so please pray that they get custody right now they have temporary custody until July 31st than it goes before the judge. Will keep you informed of that.

I know I will find a good PCP here in town infact the one that treats my husband is the one I will talk to I really like him.

Eva

I will definatly pray and without a doubt she needs to be with her daddy and mommy who will take care of her. I use to be a foster mom years ago and have worked withing state agencies years ago also and it just use to break my heart some of the conditions some kids had to live in. I am so glad that she has your daughter and son in law.. *big smiles*

Good deal with your husbands PCP...I think its so important we have to have someone we are comfortable with. Having worked in the medical field a good part of my life it amazes me how there are some good docs out there and some who just think they are "Gods" and get so upset if we even question anything ...