Lupus Support Group

Why is it when we feel good everyone takes advantage of that. I haven't been in pain for the past couple of days. YEA!! However it seems when I get better, I am being pulled from every directions. My days are so full. I have to get up early get my two littles ones off to school and daycare. Work all day (8 hours) pick up my littles ones. Go home cook, clean the kitchen and around the house, baths then it is rest time. which is lates as all get out and time to sleep. Today after I cooked, my middle child spilled her plate of all over her wrist, floor, counter. So I had to clean her up and take care of her burn, clean the floor and counter. Then my 2 year old always makes a big mess, so I had to clean that up. I asked the two oldest children and my husband to watch the baby while I took a bath. CAN I TELL YOU, there was a know at the bathroom door, it was my 2 yera old telling me he did something to his foot. I walked out to find HOT PINK finger nail polish all over his feet, hands and legs. Then I went into my bed room and it is all over the carpet and my CREAM COMFORTER!!!!! It won't come off!!!

I so sorry for you. How frustrating.I hope you are able to get a little alone time later.

Ali

PrincessK I hear you on that, when I am feeling a little better I do sooo much and I think they see me doing this so they take advantage....but I don't have little ones anymore, I sure hope you can get some time to yourself we all need that.

Eva

Your life sounds like mine. I think it is time for your spouse and older children to give you a hand. I would think that when you go to take a bath that someone could keep the little ones out of trouble. I hear everything you are going through. Same stuff here just another state. Don't be so hard on yourself and take care of yourself. You can't take care of them with out taking care of yourself. Maybe you are just trying to do more then you should when your feeling good. I do that and then I am down again. I still think that you should expect more from the other family members, good grief you have an illness. Take care and good luck to you.

Thank you so much my spouse help but sometimes I want to just shut down I'm feeling bad now and want to scream I don't sleep at night

Kid are gone to GRANDMAS for spring break. whoooo hoooooo. I have CLEANED my house from top to bottom. I only have the 2 year old at home right now!!!! He keeps me busy but it is only one and not 2. Don't have to cook if I don't want to. YES!!! I was so soar yesterday but today is another good day. Ive been having good days and I am so happy! I also want to thank you all for ALL your support. So glad I found this site. You all are the best.

PrincessK, I also have a 2 year old son and he seems to do the same too. There was one day I went into the kitchen and he had spilt nail polish all over my counters. He is a handfull. I also have an 11 year old step-son and he likes to make the little one mad until he starts screaming. It gets to be so frustrating some days, but I just do what I can when I can. It's the only way I stay sane. I am very picky when it comes to my house staying clean too and there are some days I get so aggrivated because I clean and 2 seconds later I have a hurricane again because of the kids. I just recently had a talk with my husband and the kids and explained to them that I need them to start helping around the house and help with watching the little one as well. It seems to have worked because they all have been doing their part. When I get ready my husband will play Guitar hero with the baby(because he likes to drum), so he is destracted for a little while until I get ready. Then when I'm cooking my step-son will play with him until it's time to eat. I also gave the kids some chores to do around the house and they seem to enjoy helping me. I know it's hard some days and you just want to pull your hair out, but just try to explain to them what you need help with and I'm sure they will understand. Hope this helps a little. I know exactly how you feel, but just stay calm cuz any extra stress will just make things worse. Stay strong!

PrincessK - I am so glad that your days are better. Please still try to take it easy and not rush and do everything at once. I know when I feel good I try to cram everything into that time I feel good and than the next thing ya know I am back in a flare, so from experience just maybe spread things out and rest in between whatever it is your doing.

Eva

PrincessK- I too am glad that you're having a better day. And I totally agree with mumeva- TRY AND TAKE IT EASY!

I'm so sorry about the nail polish thing ladies. Ugh! My girls are now 17 and 23. But, oh... I've not forgotten the days. The younger one had a thing about taking crayons and coloring by the doorways. You know, that tiny little area between the door time and the next wall. Grr! I used to get SO angry! But yet, what can ya do? They're only toddlers.