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Once again, hello all! I have a ? for those of you out there that have gone thru all the tests and poking and prodding before. I have been telling Dr's for several years now that I have joint pain, back pain, severe headaches, extreme fatigue, muscle tenderness and sometimes pain, concentration problems, etc etc... I went to my OBGYN abt 3 months ago because I was tired of having this rash that was controlling my life. I live on the ocean and can't so much as even go to the beach for 15 mins w/o paying largely for it. I can't sit in front of my fireplace when I'm freezing all the time, to warm up, without the rash going crazy. Heck I've even had it go crazy for nothing more than standing in front of the stove to try and cook for my children. Anyway, now that I've rambled...she did bloodwork, she said to look for lupus...a couple weeks later I returned and she told me it was negative. I asked then how could we look further becos of the above issues, to which she offered no help other than to schedule me an appt with a dermatologist. No help sleeping...no help with the pain...etc etc. I went to the dermatologist and the very first thing he said was "that looks like a lupus rash"...so I replied, "I tested negative for lupus"...to which he replied, "Lupus won't always show up in the blood work"...He did a biopsy and TADA!!!! It comes back posotive. Do any of you know if that is possible? I've got to have it systemically or something allong those lines anyway...I mean good heavens...looking at the research I feel like the poster child. Just curious if any of you have any thoughts...or maybe suggestions tata for now jcbrooke3 |
