Lupus Support Group

Hello. So my daughter has been having the beach vacation of her life with my parents and her cousins and aunties etc. Now it's time for me to go and get her. I can't drive, so I'm taking the train. I can't handle her on a train by myself. So, my Dad offered to come home on the train with us. A plan. A real plan. I swear, there was a plan, or I would have never sent her. Well, come to find out there's an event on Sunday that he already paid for and really wants to go to. He wants to take a late train back to NYC, like one that arrives in Penn Station at 10pm, but then we still have the two subway rides up to the Bronx. Can you imagine navigating that with a two year old? I really want to leave earlier. He wants to go to his event. Lupus sucks. Why can't I just do what I need to do without help? I should be grateful that he is coming at all no matter when he wants to go, because I am depending on him. But then this stuff happens and I get all like upset, like I'm a burden, like why don't they get it...etc...you know the drill. I'm just venting. We will all survive, and I am playing with the idea of braving the train on my own. I have no idea how that will play out. I'll keep you posted as this drama unfolds...

Hi MK. I hope just letting it all out helped. We all know what it feels like to be in your position. Hopefully things will work out. I take it that you can't make the switch on any other day? Hang in there.

Alison

MK.....I completly understand how you feel, just thinking about it will cause you to stress so try to take deep breaths and I know God will take care of the rest, you will see it will go smoothly. Now as for me....I just turned 54 years old and still need my mom who is 73 and she is still taking care of me....that hurts, it should be me taking care of her in her older years, it hurts so bad to see my mom and sisters cleaning my house, getting my groceries etc.......but their again I just take it one day at a time and just count my blessings that I have a wonderful family that can do these things for me.....I know you will do fine on the train with your daughter, please keep us posted.

Eva

When he picked me up at the train this afternoon, he said he would leave on whatever train makes sense for me. He's here for me. Wow. Do I feel guilty or just grateful? I think I'm choosing grateful! You guys are awesome. Thanks for the good wishes and sharing your experiences.

I so totally know what you are going through. My family is getting together at the beach this next week. I can't drive there with this stupid foot problem, going around town is one thing, driving through the coast range is another. I am just assuming I won't get to see anyone, unless my doctor has some miraculous cure on Monday.

I am so glad things worked out for you MK.

Alison

Ali....I am so sorry that you may not make that trip, I will be praying and thinking of you that this doctor can help you with her foot...please keep us posted.

Eva

I Know how you all feel,I have been down with a bad knee and not even my pain pills are helping.I get so sick of this crap and just want to give up...I go to my Dr. Thurs. maybe he can come up with something....I am geting to the point that thinks are just going to be like this....and I still have stomach problems.so I just take more meds and have the same problems. Is that what we are all doing ?

I am so sorry that your having such pain in your knee that pain pills won't help...it is miserable. I know how hard it is just to keep going but we really don't have a choice so please keep your head up....my prayers are with you. Please keep us posted on your doctors appointment.

Eva

So, he didn't go to his party, and we chose the earlier train, which was of course like over an hour late, so he could have gone to his party. And there you go. We are home back in the Bronx, and I couldn't have done the trip without him. Sabou fell asleep on the subway and there is no way I could have handled her and the bags up all those stairs.

Thanks for caring Mumeva...Just a little down and thinking of all the pills we all take and you can not see much differents!!!! Hugs and thanks for your Prays I can always use them. Lawana