Lupus Support Group

How many of you have experienced sunlight or any kind of light sensitivity? Light is starting to bother my eyes and I think that Lupus is finally starting to develop.

I definitely have sunlight sensitivity. And sometimes fleurescent lights bother me.

I am very sensitive to the sun and fluroescent lights and I have a very hard time driving at night due to lights. I have very low lighting in my house. I have the recessed lights and there all on dimmers. I wear sunblock every single day even if I don't leave the house. Another thing that bothers me is on a cloudy day if I have the shaedes open I still get the butterfly rash on my face thats how sensitive I am and even the T.V and computer screen UGH!!!

Eva

and here i thought it was just me... the sunlight hurts my eyes extremely... even if i where regular sunglasses. So the darker the better. I get the rash if i have been outside for more than 5 mins and get hot. or if i get out of a luke warm shower. we have florecent lights all over the house so far they don't seem to bother that bad only if they all are on.

I start to feel ill when I'm in the sun. When I get out of direct sunlight, I seem to get better faster. I'm starting to suspect my computer screen though...

Both direct sun and heat really bother me. Luckily florescent lights seem ok. I do have a hard time driving at night if there isn't lights along the road. If there are just headlights I just can't handle it. (Does that make sense?)

Ali

Post edited by: redhairali, at: 03/19/2009 20:07

When I was first dx. with lupus, the first year didn't really bother me in the sun. So I thought I would be fine. The second year I was at a car show. I was out in the sun for maybe 30mins. I got home and I wasen't feeling good. During the night I woke up with a bad headake.Red rash all over me. By morning I was in a very bad flare. High fever, throwing up, could hardley move. Very bad lung pain. This lasted for three weeks. My prednisone had to be raised and so on. I learned not to be in the sun or the brightness of snow and sun. Just got to sick. Gen

I was dx in 05 and the sun really don't bother me alot. I am really glad about this because Im the kind of person who likes going camping swimming fishing and hanging out at the lake. I know I can't do most of them anymore but I can dream can't I. Not when it gets hot out it seems to make my body hurt as if a cold front has come in I thought that was strange since I can take a hot bath to somewhat help my joints when Im in alot of pain. And nother thing have any of you felt fine and there labs come back bad. Like yesterday my doc called me to see if I was ok because my complement levels were low and suggested that I come in and get a shot or they could start me on prednisone again my favorite med. lol and sometimes I feel like crap and my labs will be better than before. SLE is such a funny illness you never know when its going to stike next or what it will do to you next but all of you know that I guess Im just frustrated.

I also have a very big problem being in the sun and fluorescent lights and the computer screen. We bought a new screen for our computer a month ago and it doesn't bother me as much as the old one did, it seems like this screen is a little muted which helps. I just try to avoid these things as much as possible and I always wear sunblock.

Eva

being out in the sun or just in high temperatures cause fatigue and red rash on the cheeks nose and sometimes forehead. for a month, the rash went to arms. it burned like a sunrash and was hot to the touch at the worst.