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Lupus ForumsGeneral & SupportStart Methotrexate today... A little nervous
02/05/2012 05:36 AM
ncgirl
ncgirl  
Posts: 969
Member

I had my follow up appointment with my Rheumatologist at Duke on January 27th. I am still waiting for labs to roll in online but I am to start Methotrexate and Folic Acid today. I briefly googled the side effects of Methotrexate knowing that the internet tends to give you a lot of worse case scenarios and, over hypes situations... Wink

I know a lot of you have been on it and just wondering what your experiences were. I know we are all different but it still helps me to info share Smile ((HUGS)) to all of you. ~ Juile

Lupus has taken much from me but as long as my heart still beats, it has not taken everything!
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02/05/2012 09:07 AM  Top
lunaw9
 
Posts: 14
New Member

H, I have not been on for a while but wanted to comment or reply to you. I started Methotreate and folic acid about 3-months ago too. I too read all the bad stuff on the internet and I was really not sure. I have done well with it I only get a little nauseated the first day and dierrea but not bad and not all day. I take 3-pills twice a week for now. Hope this helps you.

Previous discussions I participated in:
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02/05/2012 12:39 PM  Top
mumeva
mumeva  
Posts: 5561
Group Leader
I'm an Advocate

Julie......I wishnyounthe best with Methotrexate. I haven't been on it in years as with me it seems to cause elevated liver enzymes.......I think because I had been on it for several years, years ago it didn't help my liver. The only thing I noticed while taking it was I would get nauseous for a few days but I would take an anti-nausea pill and it helped, I think it was leucavoran.....I am taking a very small amount of Imuran right now with the Rituxan and it makes me nauseous and I take Compazine to help me with that and it works great. I also get eleated liver enzymes with Imuran but since I am on such a low dosenit's not lik Metho was.

keep us informed of your treatment with Metho.

Eva

I long to dwell in your tent forever and take refuge under the shelter of your wings: Psalms 61:4

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02/05/2012 12:41 PM  Top
IDoNotKnow
IDoNotKnow  
Posts: 22583
VIP Member

Good Luck with Methotrexate. I also take it. I am not really sure what I think of it yet to be honest. Good Luck and let us know how you feel!
"If you could read my mind you would be in tears"

"Who cares when I cry"

"A smile just hides the tears we hold inside."
- Me (IDNK)

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Thank you

02/05/2012 04:40 PM  Top
ncgirl
ncgirl  
Posts: 969
Member

Thank you all for your kind comments. I was a little confused on the RX directions vs. how I "thought" the Dr. told me to take it. I didn't realize it was a Chemo Drug Sad How did I not know this?... I am being Optimistic and crossing my fingers for good measure Smile
Lupus has taken much from me but as long as my heart still beats, it has not taken everything!

02/06/2012 07:23 AM  Top
dean69
dean69  
Posts: 131
Member

I have been on Methotrexate for awhile now and I take 8pills 1 time a week so 4 in the morning and 4 at nite,also folic acid, I just still don't know about it....so good luck and (hugs)

02/06/2012 02:02 PM  Top
ncgirl
ncgirl  
Posts: 969
Member

dean69, side effects??... Thanks & Hugs.
Lupus has taken much from me but as long as my heart still beats, it has not taken everything!
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