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12/11/2011 04:31 PM

Too much pain!

zizzcat
 
Posts: 515
Member

lately I've been in too much pain to be able to function. I can't live life from my bed!

I am prescribed 5, 5mg oxidizing per day and can take 2 to start the day plus baclofen X 4/day, which is a strong muscle relaxer. I make up for the rest with Tylenol and am told by ER doctors that I have a dangerously high Tylenol level. I would like to change to dilaudid, increase the Imuran and Add a small daily steroid dose. (I have no strength in my arms and legs).

I am seeking any helpful suggestions....

Hope

Wassat

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12/11/2011 04:34 PM
zizzcat
 
Posts: 515
Member

P.S. I have a rheumy appointment on the 15th.

Hope


12/11/2011 04:41 PM
mumeva
mumeva  
Posts: 6272
Group Leader
I'm an Advocate

Hope....I am so glad that you have that Rheumy appointment, you need to get this pain under control. So how much tylenol do you take to get the level high? I take two tylenol arthritis but not every day...never thought of getting those levels high. Please let us know what your rheumy has to say. I will keep you in my prayers.

Eva


12/11/2011 05:52 PM
Lynnette1212
Lynnette1212  
Posts: 1167
Senior Member

I was just going to ask when your next appt with your dr was...Thanks for adding that.

If you can hold tight til Thurs that would be good. You could also call them in the morning and see if they can fit you in ASAP due to your pain levels. Is there a reason why you want to jump to dilaudid from tylenol? Have you tried Lortabs or Percocets or NSAIDS? Ibuprofen might help better than tylenol since it's an antiinflammatory. Whats your dose of Imuran? And what other meds are you on? Is this an ongoing battle or are u just flaring? I hate for you to rely on prednisone to bail you out because prednisone just leads us all to problems. It masks the problems. The source of the problem is the lupus and it needs to be stabilized. Have you thought of other types of steroid treatments? There are kenelog shots, there are medrol injections that go along with a medrol dose pak. These don't have bad side effects like prednisone. I would recommend doing that and then increasing the Imuran to 150. If it's already at that dose, you may want to consider switching meds. I'm not sure what your involvement is. It's best you write down everything that has been bother you and questions you have for the dr and talk to him. Keep us updated.


12/11/2011 07:00 PM
zizzcat
 
Posts: 515
Member

I currently take 5 mgs 5 times a day of oxycodone (percocet w/out the Tylenol) and baclofen(strong muscle relaxer that works for me). I take elavil, 50 mgs and nortryptiline (antidepressants that help with pain) 50mgs Imuran twice a day and 200 plaque nil twice a day. I take 4 or 5 500 mgs Tylenol 4 or5 times a day because I am desperate for pain relief. So far my liver is ok. 1/2 an Imuran more and a small dose (4mgX2/day) of dexamethason has helped in the past. I have had a lot of pain for many, many years. These past 3-4 months have been the worse. I was in the hospital recently and was given 1/2 a gram of dilaudid every few hours and it worked better than oxy or percocet. I have an ulcer that perforated due to NSAIDS and cannot take them. I have been asking the rheumy to increase the Imuran for 8 months.now but he doesn't seem to hear me.

12/11/2011 11:38 PM
LittleLupie
Posts: 14
New Member

Sorry, I have no suggestions, but I hope you feel better soon!

12/12/2011 12:49 PM
Lynnette1212
Lynnette1212  
Posts: 1167
Senior Member

well, If thats what works for ya, then talk to him again. I think that's a lot of narcotics though. I would be looking at the underlying problem and fixing that so you can wean off of some of the narcotics. Your body has obviously already built up a dependency on these and the stronger you go, the worse it gets. I'm not sure if thats what you really want. So, I would tell him that the Imuran isn't working and you need to try another med. Just my opinion.

12/13/2011 06:39 AM
zizzcat
 
Posts: 515
Member

I tink that the idea of increasing the Imuran is a good one. My spasms and pain are in and around the organs and affect these to some extent. Since the pain moved in to my lower to mid spine, additionally, it has greatly affected the back, leg and arms pain and causes a great deal of weakness. I believe a small amount of corticosteroids may help. I am trying to keep from becomming completely homebound. The choices I have now are not working. My rheumy appt is in 2 days

Hope


12/13/2011 06:56 AM
zizzcat
 
Posts: 515
Member

PS- I have an appt with a Pain Management Specialist in Feb that is recommended by a couple of friends who have severe chronic pain. My pain has gotten a great deal worse and the ER doctors are concerned about the high Tylenol level affecting my liver, not to mention the neuropathic and organ damGe that the spasms r causing in my extra

Irked, kidneys and spine. My kidney function has decreased by 20% in 3 months.

Hope


12/15/2011 12:12 AM
Marianne76
Posts: 18
New Member

I've had Kenallog 60 mg shot twice each lasted me about 6 wks. My Rheumy would rather not have me use it once the Plaquenil starts to kick in. Ive had tylenol and Advil during flare ups but didn't help... haven't tried the stronger ones. I hope u feel better. Take care.

Post edited by: Marianne76, at: 12/15/2011 12:12 AM

Post edited by: Marianne76, at: 12/15/2011 12:13 AM

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