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01/02/2009 03:42 PM

Doc appt not so good

Jeska
Jeska  
Posts: 7
New Member

I recently just had an appt with my RA Doc and It didn't go so well as i thought it would.. My organs are still very inflamed.. and he basically told me I would most likely have a Kidney Disease in 5 to 10 years. =/ Was anyone else told this to before?? I don't know what I should do to prevent this from happening, iim only 18. I excerise, i eat chicken, fish, tuna. I cant have red meats, caffeine etc from now on. if this has happen to anyone please let me know.. thank you!
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01/02/2009 04:30 PM
muffet
muffet  
Posts: 28
Member

Hey girl idk wat to tell you but almost the samething is going on with mei have to take some more test on the 5th all I could tell you is pray and ill pray for you to. Just stay strong and live your life the best way you know how to k

01/05/2009 10:06 AM
crimsonshedemon
crimsonshedemon  
Posts: 148
Member

Sorry to hear that.

Have you talked to a nephrologist yet? He/She should be able to answer your questions. Don't be afraid to shop around for a doc.

I was 19 when I was diagnosed. It sucks. Hang in there.


01/06/2009 09:59 PM
Jeska
Jeska  
Posts: 7
New Member

hey.. thanks for the comment.. i have a rhumatoligst who actually told me all this.. take care..

01/11/2009 03:36 AM
crimsonshedemon
crimsonshedemon  
Posts: 148
Member

???????????Was anyone else told this to before?? I don't know what I should do to prevent this from happening, iim only 18. I excerise, i eat chicken, fish, tuna. I cant have red meats, caffeine etc from now on. if this has happen to anyone please let me know.. thank you!??????

I'm confused by your reply so I'm going to reply......

This is why you need a nephrologist (a kidney specialist). A nephrologist will know way more about your kidneys than a rheumy. Just as you need an opthamologist for a Plaquenil check. The opthamologist, not the rheumatologist, is the expert when it comes to your eyes and the medication that may harm them... just as a nephrologist is the expert who will know your kidneys.

You will learn with experience that most rheumatologists really aren't a lot of help for many of our problems. Most deal with very specific issues pertaining to lupus and that's it. I've benefited more from a family physician who deals with everything else. The many rheumies I've seen really could care less if I could function daily- if I was sleeping, in pain, exercising, etc.

I've seen hundreds of lupus patients who think a rheumatologist is all they need for lupus and that's simply not the case. Don't be afraid to be proactive in your health care. If you have questions, like you do, find a doctor who will help you. You obviously are wanting a game plan- not wanting to sit around and wait for kidney failure. Your rheumatologist does not have a crystal ball. Kidney involvement is possible with lupus but not inevitable.

Inflammation is the enemy. There are things that can be done to help reduce/eliminate inflammation- specifically certain levels of eph/dha which are known inflammation fighters. There is always something to do so never give up.

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