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Lupus labs.... I was dx. with Lupus many years ago. They now tell me that I probably didn't have Lupus, and it's Fibromyalgia and Myofacial Syndrome. I didn't know that a person could be diagnosed and then told 'no'. I still often wonder if I'm misdiagnosed and if it really is Lupus. But then again.... Here are what some of my labs say: Possitive ANA - Speckled Pattern Titer 1:80 Negative DNA CRP .7 (high) C3 170 (normal) C4 52 (high) Any thoughts? ~ Lupus and other symptoms/dx: Extreme fatigue Anemia Sun and light sensitivity Raynaud's phenomenon Mouth ulcers Chronic pain in numerous areas High BP IBS Depression and Anxiety Carpal Tunnel Migraines Short term memory issues I feel like I'm the queen of knowledge when it comes to Lupus. My mom was diagnosed in the early 1980's. We read every book out there. At that time there wasn't much information about Lupus. We had to travel to the Univeristy of Iowa Medical Clinics and Hospital because there was only 1 doctor in the state that could treat her. She was even on the National Lupus Board, supporting patients like herself. She ended up on dialysis for almost 8 years. She wasn't able to have a transplant due to side effects from a blood transfusion. She died ten years ago at the age of 57 with complications from lupus. --- I'm sure that they feel that I now don't have it because the odds are slim that a mother AND daughter would have it. It's more likely that my girls could have it. I feel that this mother AND daughter thing is just a 'myth'. Thanks for taking time to read this. And PLEASE tell me what you think. Amy "When you feel like giving up, remember why you held on for so long in the first place." ~Unknown |
