Lupus Support Group

was on them since november tying to stop them slowly less one every few weeks started having headaches again might be with todler playing up ie not going to bed had take him lost count how many times then other one wouldnt go started screaming at me for half an hour. joys of a night in. got work tom evening then i have go lovely 12 hour day shifts ouch.

just feel like having a good moan tearfull after all of that aches enough just standing and walking picking up a screaming todler who wont go bed. wouldnt mind a chat does any one no a good chat room cant go out hence work or kids dont tell em at work much dont like em much anyway only like a few i work with feel like a fraud symptons come and go i cant lift as much as they can care work. would love make new friends out of all this eventualy.

Hey there, sorry you are going through this. Don't know anything about prednisone - I am sure someone else knowledgeable will jump in talk about that - but I do know toddlers. - haha. It can be tough. Take a deep breath and just do your best. Hugs

I can say that getting off of prednisone is never easy. You will feel bad while your body readjusts. But, if you can just go day by day, one day you will find you are feeling better. It is never fun.

Alison

Hi new here. I have been diagnosed with lupus for two years. Been taking medrol (similar to prednisone) for two years in various doses. I tried to ween from med under MD's suggestion and it sent me back in a tail spin. Argh. Was so looking forward to deleting one medication from my regime. So then I was told by MD that maybe the low dose is just what my body needs.

So even with increased dose having same symptoms and even worse joint pain. So I guess the moral of this post is just maybe your body needs it.

Post edited by: DonnaPerryHall, at: 02/14/2011 09:30 AM