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"Lupus Awareness" (kam123)

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"I joined this site when i hit my ultimate low. Joining has helped me connect with others who understand me and how i feel and has helped me keep some sanity in my life.
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Lupus Online Support Group
A community of patients, family members and friends dedicated to dealing with Lupus, together.
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11/21/2008 11:47
Jeska
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Hellooo I am new to this support group.. and I think it would be interesting to find out how others are feeling or just about their stories. I was diagnosed with lupus in November 2007.. I was beginning to feel very fatigue, no energy for anything, headaches for a month straight, rashes, organs hurting, my fingers, wrist, feet, ankles would be swollen but I always just thought it was my Rheumatoid Arthritis. (Diagnosed in 2004). I never did anything about it until i had a regular doctor appt with my physician, she ran as many as 5 test on me that day. I had to wait for the results to come back, after they came back i went to go see my Rheumatologists, he was the one who diagnosed me with Lupus. To double check, my Rheumatologists asked me to do a MRI and a Spinal Tap and sure enough i have lupus. The first time I found out I already had a feeling it was true because my grandma on my dads side has it; which means my dad has the antibody of it.

I have been hospitalized twice ever since then. The two times I was hospitalized was during my senior year. I was stressing myself out because I didn't think I would graduate my family, friends, and doctors told me not to because it would cause a flare and it did. I had missed about a total of five months of school. Almost the whole month of January. Then Feb 4th-May 15th. Even though I was gone that long I was still able to gra[/color]duate only beca[/color]use I had tons and tons of doctor notes. (Those always come in handy). As each day passes it makes me only stronger.

Post edited by: Jeska, at: 11/21/2008 11:56

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11/21/2008 13:00
Tillie
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Welcome Jeska! This site is awesome! Everyone has a different story but knows exactly how each other feels. Tons of support that is much needed at this site. And great to hear diffenet opinions re: symptoms/meds/frustrations/etc. Hope to keep hearing about you and hope wellness to you.

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11/25/2008 09:00
fibroforever
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Your story is inspiring to others. Especially younger people! It's great that you were still able to graduate! Awesome!

So glad you found our group. Feel free to ask questions and share. We're all in this fight together.

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown
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11/26/2008 13:30
mumeva
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What a story!! Congradualations to you through all of this you managed to graduate. This site is a wonderful site to meet and share stories with people who share this illness. Happy Thanksgiving!!
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