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Lupus Community Lupus Support Forums General & Support Do you have the "twitches"
 

Do you have the "twitches"


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12/12/2007 05:43
oneloopykat
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 I have always had little muscle twitches but never really thought anything about it until recently. Lately it seems like my muscles twitch ALL the time. My eyes especially...it looks like I'm batting my eyes...so it looks pretty strange. My fingers will start twitiching too..try typing when your finger is flopping up and down uncontrollably...talk about frustrating! I was just wonding if maybe this was a common problem or if I can add this to the "why I'm special" list

Bright blessings,

Kaitlan
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09/01/2008 12:02
temeraire
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 Yes! Yes! Sorry, I don't mean to sound excited for your misery, but I thought I was going crazy! I was just diagnosed in May. Last November, I started getting twitches in my left arm, then it went to my right, then my legs and face. I also have numbness and weakness to the point that I drop things in my hand, can't type or write well, my legs start shaking and they go out from under me. I asked my rheumy and she said she didn't think it was lupus and sent me to my gen. Gen sent me to a neurologist, who did a bunch of tests and and MRI to say he didn't know, but he thinks the inflammation from the lupus is pressing on nerves causing these symptoms. It is very annoying and inconvenient, and I'm a little miffed that my rheumy is blowing it off. I feel self-conscious about the face twitching too! Especially with my beautiful butterfly also! Have you found out anything since you posted? I hope you're feeling better - at least you're not alone in your "specialness".

Best Wishes,

Rebecca
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09/01/2008 12:13
sweetleaf
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 dont you love how one doc sends you to another who just sends you to another and nobody ever can give you an answer. happens t me all the time. and by the way, i always twitch,my legs my eyes my lips. its annoying but i can deal with it. but i just wanted to know what the cause was and same as you no answers!!

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09/01/2008 12:19
temeraire
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 Do your twitches get worse with flares? I am convinced it has to do with nerves and it seems logical that all the inflammation we experience could be pressing on those millions of nerves. I just love how you play musical doctors and they all get a copay and you get nothing! Hang in there!
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09/01/2008 20:32
sweetleaf
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 hahaha! i know. i have been in a flare for a long time now a few months. and things arent getting any better. the twitches come and go. but i too think its nerves also the stinging feeling i wrote about on another post is caused by nerves also. so they say. u hang in there too!
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09/02/2008 05:49
momwife26
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 Well it is good to know I am not crazy. I have the same problem it is really weird. My doc told me I needed more potassium in my diet. They did not run any tests or anything, they made me feel like it was normal and I was an idiot. I can't afford to get redirected to another specialist so I just kind of deal with it. I don't even bring it up anymore, I feel like nobody is ever really listening.

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09/02/2008 05:55
fibroforever
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 I often time have muscle spasms. Same thing as the twitches?

I did have an EMG a couple of weeks ago. That's a test that checks for nerve damage. They only did this test though because I've been having trouble with my left arm and leg tingling and then going numb.

Thankfully- no nerve damage. (And by the way... the test is not a fun one, at all. So, just to prepare you if you ever have it.)

I do take muscle relaxers for the spasms.

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown
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09/03/2008 22:33
NoodleMom10
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 yea I have that too. My arms, legs, eyes, and fingers. Very hard to type with this going on. So ya'll are not alone.

Kasey

Kasey wife to my HubbyMan and Mom to my ten kiddoes
LuvBug 25, BooBear 23, FroggyGirl 19, Butterfly 16,
GuitarMan 15, LittleMiss 13, LittleMan 13,
BrainyBoy 11, Skooch 8
and my sweet Beanie in Heaven
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09/04/2008 13:34
temeraire
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 I had that EMG done too. It really is awful! The neuro said I was showing mild nerve damage in my left wrist like carpal tunnel, but it's not carpal tunnel. He did check my potassium too, but it was normal. He did give me the Neurontin for the heck of it, but it really does freak me out that none of the doctors have a clue about this! I'm just glad I'm not in the boat alone! Thank you everyone!
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