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Hi I'm Tracey... I've had lupus since I was 13.... I have joint pain/aches....quite a bit of fatigue... A lot of the fatigue and aches have increased exponentially since I had a child two years ago, I think it is because I don't get as much rest. I once read a book on lupus that said we are supposed to treat *REST* as though it were one of our medications, like it's a prescription! Imagine that. But, I think it's true... In the past, one of my coping tools even though I'm young and was even younger then----in my twenties then----would be to literally place myself on bedrest and just miss class (in college or law school). I would grab snacks/juices/books/remote.....places them all near the bedside and literally get total rest...and getting a day or two of that really, really helped.... and heat....Hot Baths always helps/helped to ease my joints. So, I try to go to the jaccuzzi at my gym when I can...thankfully there is a nursery at my gym! I also have sun sensitivity....it bothers me...I don't get a rash...but it just always feels as though it's burning... I've also noticed that a year ago from now I had the worst pain ever and was even referred to chronic pain doctors.... Yet, I thought I saw the most improvement when I went organic!  |
