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Lupus ForumsGeneral & SupportNEVER NO RESPONSE
11/13/2010 06:28 PM
Honey01
 
Posts: 27
Member

ITS TOO BAD I THOUGHT I HAD A SUPPORT GROUP BUT I WAS WRONG! SO TO ALL I HOPE EVERYBODY IS IN GOOD HEALTH!

TRUELY,HONEY01Sad

Reply

11/14/2010 12:18 AM  Top
redhairali
redhairali
 
Posts: 3400
Group Leader

Honey, I answered your post about getting a pic up. You are more then welcome to respond to others posts as well. That would help us get to know you.

Alison

Post edited by: redhairali, at: 11/14/2010 12:22 AM


11/14/2010 10:17 AM  Top
Bunnyhugger75
Bunnyhugger75
 
Posts: 2019
Senior Member

I'm sorry that I wasn't around when you put up your post. I know for myself, I have been very ill and had a lot of testing and doctor appointments lately that have kept me away from the site. Sadly I haven't had any spoons left for computer time.

I hope things get better,

AMy

Diagnosed with Lupus in 2002. 36 yr old On: Plaquenil 2x a day, Cellcept 500mg 2x a day,Lasix 40mg 1xday, Prednisone 9 mg, Folic Acid 1mg, Vit D, Prilosec, Effexor 50mg 2x a day, Ativan 4 mg a day, DHEA, Methadone 2xday, Dilaudid 4mg, compazine, Imitrex, Doxepin,phenegran all as needed (prn).

Other diseases: Adrenal Insufficiency, Endometriosis, Crohn's Disease, Gastritis, Postherpetic Neuralgia, Raynauds, Sjogrens, chronic anemia, costochondritis, fibromyalgia.

11/14/2010 02:57 PM  Top
Pandora74
Pandora74
 
Posts: 1985
Senior Member
I'm an Advocate

June, I am also sorry. I did go back to see your post. It was posted in the chronic pain support group. I also have Sjogrens and joined that group and didn't get responses so I left. I get all the support that I need from the Lupus group. So anyway, your post about the pain.......it is terrible that a company would even consider fighting you for this long when they are the ones that hit you with an 18 wheeler. If your pain is not being managed well I would try to get another opinion. You shouldn't have to feel awkward by someone who is supposed to help you. I have gotten new doctors in the past because I didn't feel a connection with them. I don't regret it. So I hope you can find someone who has compassion for what you are going through.

April

Yesterday I dared to Struggle. Today I dared to win- Bernadette Devlin
When you get to the end of your rope, tie a knot and hang on-Anonymous

Previous discussions I participated in:
Wondering
Pinched nerve?
Lupus and cleaning

11/14/2010 07:43 PM  Top
mumeva
mumeva
 
Posts: 5494
Group Leader
I'm an Advocate

June....I'm like April and I don't belong to the Pain Supppot site.....I only belong to the Lupus and Seizure Support Group. I am so sorry that you didn't get any response back.....please know that most people here are so wonderful and really do respond to most posts. Please know that you are more than welcome to post often.......wishing you well.

Eva

I long to dwell in your tent forever and take refuge under the shelter of your wings: Psalms 61:4

11/19/2010 08:19 PM  Top
Honey01
 
Posts: 27
Member

I really feel better that you all answered me. You dont know how much it means to me! So..... GOD BLESS YOU ALL

11/19/2010 08:42 PM  Top
mumeva
mumeva
 
Posts: 5494
Group Leader
I'm an Advocate

Honey....I'm glad you feel better....anytime you want to come back we will be here. I wish you all the best.

Eva

I long to dwell in your tent forever and take refuge under the shelter of your wings: Psalms 61:4
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