Also is there anything I can do about the extreme exhaustion I had yesterday? My husband says that I need to stop thinking about the pan and keep moving around.I think he is too overwhelmed to read any of the books

There are a few things to do: pain medication for pain, anti-depressants, ice/heat packs as needed, exercise- tai chi, yoga, rest, steroid dose pack to pull thru the flare.

Exhaustion like pain is part of this whole disease. Have you had a sleep study? If not, I'd recommend one. The study will show exactly what's happening or not happening when you sleep.

Mine showed that I get no stage 4 sleep. With that info, I'm able to take meds specific to that problem. Drugs like Elavil, Trazadone, etc help to restore stage 4 sleep. Drugs like Ambien, sonata, don't. The medication I'm using now is amazing. I wake up refreshed and for the most part, have energy to do things. When we don't sleep properly, our bodies don't cope well. Our pain levels are increased, our blood pressure goes up, we're foggy, etc. Proper sleep makes all the difference.

Drugs like Provigil and Adderall can also be used to help the fatigue.

Use multiple doctors to achieve better health. One doctor won't treat everything you need.

"Stop thinking about the pain and keep moving?" Hmmm, sounds like your husband has no idea what you're dealing with. To give him the benefit of the doubt... (I won't even say what I would do)

Since he can't see your pain, he thinks it must not be that bad. That's why invisible illnesses are so difficult for people to deal with- there's no blood, no cast, no obvious signs of an illness.

How/Why would he be too overwhelmed to educate himself about your illness? I don't understand that.

Sounds like counseling would be helpful for your husband and you and for all couples newly diagnosed. Obviously, the communication is suffering and counseling is a safe place to talk and also teaches us how to talk to each other.....Being dx'd with a chronic illness is not easy and even more difficult when the spouse isn't being as understanding/compassionate as he/she should be. He needs to grieve the loss of the healthy, old you and until that happens, it's difficult to move forward.

Good luck

My husband has the bad habit of buring his head in the sand when it comes to medical problems whether it is his or anothers persons.He tends to think if he ignores it,it will go away.He is a diabetic himself and it is a constant fight to get him to take his blood sugar

thanks again for the advice

Try not to sit too much. You can get really stiff is you sit too much. But, then again, you do need lots of rest. It's just never a win-win.

crimsonshedemon gave great advice. The only other thing I can think of to add to maybe help you is to soak in the tub. It doesn't help everyone, but for some people it's very soothing. I know for me, it not only helps the pain, but helps me to calm down.