Lupus Support Group

Ok so the night before last I got ready for bed. Brushed my teeth and use saline spray and blew my nose since I was all stuffed up like I have been for most of the pregnancy. Ive always had sinus issues. Anyhow, I laid down around 11pm and woke up close to 4am feeling really nauseous. I tried to disregard it and get back to sleep probably 3 or 4 times but kept waking up. When I decided to get up and try to use the bathroom to hopefully get back to sleep I was awake enough to realize I felt like I was having post nasal drip. So when I got it out of my throat and spit it out of my mouth into the sink it was nothing but blood, spit and 2 nice sized blood clots. I remember in my mouth it had felt like the chunky mucus you get with a cold etc but when I spit it out and saw that it was a lot of blood. I have had nosebleeds with my pregnancies and some bleeding before due to blowing my nose but nothing like this. I used the saline spray again later that day due to stuffiness but I never had anymore of the bleeding/clotting since that one time. Anyone know what it might be? Here's a link to a pic I took of it to show my rheumy:

Lemme know if anyone has experienced this before!

Also, I wanted to inform everyone since the hernia surgery my son had on Aug 13th, he has now contracted staph/mrsa infection in his incision & they have him on 2 diff meds for it. It is local only thankfully but were praying it heals & gets better as the next step is to go back in and remove the infection. Keep us in your prayers as I am due for my c-section Sept 20th at the same hospital he had his surgery & we think maybe the germs came from the hospital itself. I am a little scared to come home and have my son fulltime, a newborn & myself with a much larger incision and opportunity for infection with a compromised immune system already. Hope everything works out with this! Hope you all are well. *hugs* -Lupie Britt

I also had a strange experience a few nights before that which I thought was low blood sugar. I hadn't eaten dinner yet and had been upset due to hormones. I was sitting at the table and all of the sudden I started feeling really disoriented and then everything almost went completely black in front of me and I started falling out of the chair. It happened twice almost back to back, then I got really shakey & anxious, dizzy, my heart started racing. I was very nauseous and my stomach hurt like bad hunger pains. My bf was standing there and helped me get some juice cuz I thought it was my sugar so I chugged that down and ate a little something and eventually it went away. Even before all that I had been drinking gatorade so I wasn't sure why my sugar would've dropped so drastically since I had something in my system at least. Dont know if that was connected or not to the above occurrence but thought Id mention it.

oh goodness... please call your Rheumy, get in and show them the picture. I know you said it felt like post nasal drip but... it would be great if he/she did an x-ray too to make sure it's not something that came UP from somewhere. PLEASE LET ME KNOW HOW YOU ARE DOING!! Great thinking on taking the pic too ~ Julie

I agree with Julie, I would definately show your rheumy the picture, sometimes we cant always explain for them to understand, Yes great idea for the pic. I am praying that all goes well with your delivery and your son. That is so scary to think the staff infection could be coming from the hospital itself. Praying for Gods Protection for both of you, Hugs and God Bless. Thelma

Yeah you should ket your doctor know.. I remember at the beginning I use to get a lot of nose bleeds with a lot of clots coming out of my nose.

Did they ever figure out what the bleeding & clots were from?

Britt....I agree with these ladies you really need to get in and see her....please let us know what they have to say.

Eva

Your platelets could be low. Are you bruising more than normal also? You need to get a CBC drawn.

I am anxious to hear what you find out as well. One thing Im wondering is if you have been tested for Sjorgens? I was surprised to find out that I had it but then learned that it is another AI that causes inflamation and dryness of all the mucous membranes. Subsequently it explains a lot of sinus pressure and in some people, nosebleeds.

Since you are worried about your blood sugar I'm wondering if you have diabetes, even gestational diabetes?

Congratulations on your upcoming baby arrival! There is sure alot going on in your life!

Hang in there.

Sonja

Yeah the doctor said its because my lupus was so out of control and it was one of the symptoms.