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Macv"For me, MDjunction has been a place where I can share my experiences
living with the very rare bone disease called Ollier's ( Enchondromatosis ) with the parents of children recently diagnosed. I can help them not to run
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Linda aka Macv
" (Macv)

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Lupus ForumsGeneral & SupportDoctor called..
08/16/2010 11:58 AM
wozment
wozment  
Posts: 363
Member

and she wants me to come in for more xrays and even more blood work next Tuesday. Then I get to see her that Friday. Hoping to FINALLY get somewhere with this whole thing. Waiting is so hard!

~Wendy

Reply

08/16/2010 01:39 PM  Top
thissucksmajor

Wendy,

Waiting is really hard. I know it! I went through a few rheumys to get help. I'm not a doctor.. but apparently it can be a hard disease to diagnose sometimes. It seems like a lot of people on here felt symptoms long before they were finally diagnosed. I know that probably doesn't bring you much comfort, but we are all behind you! I'll be hoping and praying that this round of blood work and xrays produces a diagnosis and more treatment options for you!! It sounds like your last conversation was better with your doctor. Stick with it!


08/16/2010 03:17 PM  Top
Bunnyhugger75
Bunnyhugger75  
Posts: 2019
Senior Member

Wow, that is great news Wendy! I'm glad she is being so thorough. Your appointment on Friday will hopefully bring a definitive diagnosis! Hang in there Smile

Take care,

Amy

Diagnosed with Lupus in 2002. 36 yr old On: Plaquenil 2x a day, Cellcept 500mg 2x a day,Lasix 40mg 1xday, Prednisone 9 mg, Folic Acid 1mg, Vit D, Prilosec, Effexor 50mg 2x a day, Ativan 4 mg a day, DHEA, Methadone 2xday, Dilaudid 4mg, compazine, Imitrex, Doxepin,phenegran all as needed (prn).

Other diseases: Adrenal Insufficiency, Endometriosis, Crohn's Disease, Gastritis, Postherpetic Neuralgia, Raynauds, Sjogrens, chronic anemia, costochondritis, fibromyalgia.

08/16/2010 04:50 PM  Top
ncgirl
ncgirl  
Posts: 969
Member

Wonderful! Hopefully Friday you will have some answers!! I will be thinking of you and praying for resolution Wendy!
Lupus has taken much from me but as long as my heart still beats, it has not taken everything!

08/16/2010 07:03 PM  Top
Lynnette1212
Lynnette1212  
Posts: 1167
Senior Member

Hope it goes well. Keep us updated. I'll be thinking of ya.

Previous discussions I participated in:
Tanning Beds and Plaquenil
Question!
I'm Sarah :)

08/16/2010 07:54 PM  Top
wozment
wozment  
Posts: 363
Member

Thank you so much everyone! I am hoping to finally get some real answers. Smile

~Wendy


Previous discussions I participated in:
So...I got a call
Brrrrr!!!!
I'm Sarah :)
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