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Flares and Fatque
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09/24/2008 19:38
CarmenFrances
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 Hello everybody! I've just learned I have lupus about two weeks ago, I've been doing a lot of reading. I'm still confused about fatique and flares. I know what are flares, at least I think I do; but how do you know you're going to have a flare and how to stop it? Just like, how do you know you're having fatique? The pieces are coming together slowly, within the years of being in pain and always getting sick and always so very tired. I work 50-60 hours a week plus go to school 2 nights a week. Sometimes I don't think I'm going to make it through the day!!!!!
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09/25/2008 02:42
AliciaSA
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 I'm new to this too. I've been tired for close to 20 years so I don't what normal feels like anymore!! I only learned in July that I have lupus and I don't know any answers for you, but I'll be waiting to see what others say.

Welcome to the group


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09/25/2008 03:18
TLClose
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 Flares are different with different people. I sometimes just feel BLA and that is a flare. Or when I am in so much pain in my joints and cant hardly walk and have to use a cane to help me. Sometimes I break out in a rash all over my neck and chest. I guess it all depends on the person. I do know when I get a really bad flare whether it be my joints yelling at me or breaking out or even just plum tired, its my body's way of saying hey slow down and relax. When this happens I have pushed myself to far and I am in bed for a week to 2 wks. You will know when you are in a flare but what you have to do is to not ignore it and take a rest.

You will probably get alot of reply's to this post, but what you will also get is help.

Take care and keep talking to us.
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09/25/2008 10:15
mumeva
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 Sometimes I can tell when I'm going into a flare. I get vertigo-headaches and extremely tired and I also break out with ulcers in my mouth and my whole body hurts from muscles to joints to nerve pain. Sometimes I run a fever and I just want to stay in bed. It is different for everyone because not everyone has the same type of lupus. I do get tired if I overdue so I try to rest a little bit each day. You in time will know the difference.
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09/25/2008 16:55
CarmenFrances
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 Thank you for your great input. I'm glad I found this support group, though I've only been a member for one day I've learned a lot already. Thank you again.
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09/26/2008 10:30
fibroforever
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 I can't tell when a flare is coming on. I can tell you though, that with me- a flare is usually caused by my own stupidity. It's called over-doing. I tend to think that I'm 'Super Woman' and can do way more than I can. I'm trying to learn to realize what my limits are. But, it's been years, and I've still not got it totally figured out.

As far as stopping a flare. Wheww! That's a tough one! For me, there's no stopping. My body is just done. I usually end up in bed for a day or two. I'll have major headaches, fatigue, nauseous, vomitting, etc. It's horrible.

Just take time to learn your body and figure out what things might cause a flare for you. Then, make sure you take care of yourself when it hits.

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown
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09/27/2008 15:02
papillon8
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 I agree with Fibro completely - know what causes a flare and try to avoid it when possible. No sleep and coffee are definitely things that I avoid. It's too bad since I love coffee and I'm student but I have to keep reminding myself how gross I feel after a little caffeinated indulgence. From your post it sounds like you put in a lot of hours at and you go to school - make sure that you are getting adequate rest. It will take some trial and error to figure out what causes a flare for you but while figuring it out remember to take care of yourself!

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09/29/2008 04:55
dmott
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 When I first was told I had lupus I was working about 60 - 80 hours a week. I was told by the doctor to stop putting so much stress on my body. I have just now started a new job that I work only 40 hours a week. That is much better on the flares. You just have to watch your body and know when you are going through a flare an how to work through it. I have only been on this site for about 3 weeks and I love it. Everyone is so nice and helpful.

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09/29/2008 11:01
KristieRN
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 I was diagnosed in May and my flare has been horrible. Lots of joint pain, fatigue. My doctor just today put me on a 20 hour work week for 2 weeks so I can get rest. Its horrible and I wish you the best of luck. We will get through this.
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09/29/2008 11:57
Tillie
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 It is crazy how everyone's flares are different. I was diagnosed about 2 yrs ago, and am just starting to notice when a flare is coming. I usually will start feeling extremley tired and have sharp, shooting pains in my arms and/or legs. Sometimes it joint pain. ANd sometimes I get very swollen, especailly around my face. Then sometimes I feel great and then can't get out of bed the next day. That's the joy of lupus... you never know what you going to get. I was doing the same thing too-working 50+ hrs a week, and 20+ hrs part time school. I was getting sicker and sicker and had to quit school and do intermittent FMLA-I miss between 2-5 days of work each month... I keep thinking I'm doing better than I'm in a flare and can't get out of bed. Everyone's symptoms seem a little different, so it's hard to say-but it's awesome to have this website as support and to see that everyone understands... also, maybe wierd, but I notice that when the barometric pressue is changing alot-a flare is coming on. I just try to take it easy. But, if your like me, you snicker every time someone says that becuase it's almost impossble in regular daily life any more.... good luck and seriously don't over do it or you'll get sicker...

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