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Lupus Community Lupus Support Forums General & Support I have lost my abilities and independance
I have lost my abilities and independance
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09/03/2008 23:05
NoodleMom10
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Posts: 32
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 I am in a horrible flare. I was diagnosed last November. I was very ill until say late March early April. I started to feel some better. I got back to probably 50% of who I used to be. About the third week in June I went into another flare. The pain is terrible. Exhaustion too. I am unable to walk any distance, Maybe to the end of my drive and back. I have to use a cane. I cannot drive say to Walmart for a quick out because on what is considered a good day now I would be so exhausted by the end that it would be too dangerous for me to drive.I have to depend on HubbyMan to drive me anywhere.

I am so frustrated and angry. I got a taste of remission only to become so ill that even getting out of bed is a feat in and of itself.

Anyone lose abilities and/or independence?

Kasey

Kasey wife to my HubbyMan and Mom to my ten kiddoes
LuvBug 25, BooBear 23, FroggyGirl 19, Butterfly 16,
GuitarMan 15, LittleMiss 13, LittleMan 13,
BrainyBoy 11, Skooch 8
and my sweet Beanie in Heaven
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09/04/2008 03:08
fibroforever
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 Kasey- Sorry you're experiencing the losing of abilities and independence. I hear ya though! Youza!

I get extremely frustrated at times. I'm unable to make a trip to the grocery store by myself. I have to have a family member help put the groceries in the cart, onto the counter, back into the cart, into the car, then carry them into the house and put them away. (I'm exhausted just thinking about it.)

I also have Fibro in addition to the Lupus. So... there are many, many things I can't do on a daily basis.

Just wanted to tell ya. You're definitely not alone. Hang in there. Value the 'good' days. They can be far and few. And take care of yourself every day.

~gentle hugs~

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown
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09/04/2008 06:23
NoodleMom10
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Posts: 32
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 Thank you, it is a real drag not being able to do much of anything for ourselves but thankfully we have family who help. And who knows.....we may just possibly start to feel better and better and regain some of what we lost.

Kasey

Kasey wife to my HubbyMan and Mom to my ten kiddoes
LuvBug 25, BooBear 23, FroggyGirl 19, Butterfly 16,
GuitarMan 15, LittleMiss 13, LittleMan 13,
BrainyBoy 11, Skooch 8
and my sweet Beanie in Heaven
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