temeraire
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I was just diagnosed with SLE in May after over a year of horrible pain. I'm glad I finally know what it is, but now I'm getting a variety of responses from friends and family and I'm not sure what to think. Some people react to me like I'm dying, and the others act like it's nothing at all. They say, "Oh, I know someone with that and they're fine." Everyone knows someone with it, but I haven't met anyone to talk to about it. I've been taking Plaquenil since May. I have good spells and bad spells. Right now I'm miserable. I understood (misunderstood?) from the dr and everyone else, that if I just take the Plaquenil, in 4 months I will feel like normal and stay that way. Cool - so it's been 4 months . . and? I'm also having tingling, numbing and weakness in my arms and legs - so much so that I drop what I'm holding, or my legs just collapse. It's usually accompanied with the other lupus symptoms. I went to my regular doctor, my rheumatologist and a neurologist and none of them know anything about it. They said it's probably the lupus. Have any of you experienced this or know anything about it. I'm really just kind of clueless, confused and overwhelmed with all of this. I just want to hear from someone who actually has it! Thank you! |
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