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Lupus Community Lupus Support Forums General & Support lab tests
 

lab tests


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08/20/2008 10:48
fibroforever
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 Okay... so I haven't been feeling well in like 4 months. I'd thought it was a Fibro flare, until the last month. Over the last month, I've been experiencing sores in my mouth and nose. I've always (for like 17 years) tested showing a possitive Speckled ANA, with a Titer of 1:80. It's never changed. Until now!

I went to the rheumy last week, thinking that maybe I was starting to show a few more Lupus symptoms. I didn't say anything to her. It was her thinking also- she basically confirmed my thinking. So, she ran some labs, including the ANA. Now, it's showing negative....? I'm so confused!

I feel the worst I've felt in years, but yet... no Lupus? Is my Fibro just that bad?

It's depressing...trying to get the bottom of stuff and feeling like I'm hitting a dead end every time.

Well, I pretty much babbled here. Sorry. --- My question is: Have any of you had possitive AND negative ANA's? Thanks.

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown
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08/20/2008 11:03
redhairali
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 It has been my experience that tests really don't mean anything when it comes to lupus. This lovely disease just like to mess with us. It seems like nothing is stable and that they way we feel may have not connection to test results. It would just be so much easier if the were a textbook set of symptoms to treat a textbook case of lupus. But, that isn't happening. Everything about lupus is just odd. I hope you start to feel bbetter soon.

Ali


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08/22/2008 17:21
sweetleaf
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 my mom has pos and neg tests all the time since she was diagnosed about 15 years ago. but she still feels the same. either way. its very confusing to us also.

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08/25/2008 21:16
arlupie
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 I also have neg ANA's, but obvious discoid lupus with symptoms of SLE. I think Lupus makes its own rules as it goes!!LOL

I hope you feel better soon. It is hard to search for answers all the time.


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09/08/2008 20:45
polivito
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 It is good for me to read your stories - I have been dealing with Lupus for at least 25 years (and I am only 35). The last 6 months have been my worst ever and my lab tests still are hardly showing any activity at all. If I am going to feel this horrible couldn't my tests at least show it!?! It is so frustrating. My tests are showing long term low iron counts (7) and chronic anemia and that the lupus is attacking around my thyroid. But my symptoms are so bad and just getting worse - I feel like I won't really be taken seriously until I either look really sick or my results are off the charts. Urggghhhh!
Paula

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09/09/2008 08:05
fibroforever
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 polivito- I'm right there with ya. Feeling some days even worse than "my" normal. And then nothing showing up when going to the doctor. It's often frustrating and I leave feeling like it's all in my head. They don't tell me that, I just feel that way.

We're not crazy though. And, we must keep your chins up! Hang in there.

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown
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09/09/2008 09:31
mumeva
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 Amy I am the same way. I feel so cruddy but my lab tests come back normal. The only test that showed anything was the MRI and MRA but thats because I had the brain bleeds. You would think that after having the brain bleeds and the nerve damage I would have positive labs. Thats just the way this illness is. I know its not in our head (well I guess it is in mine since my brain exploded) and I know were not crazy and I try to keep a positive outlook on things but sometimes it gets to be a little to much. I'm sorry I'm not positive today but I'm really not feeling well at all so I guess I'm going to head back to bed.

Eva
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09/09/2008 22:25
LupieToons
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 I'm right there with all of you on this issue. But I have a theory, though a long-shot. Hear me out:

My healthcare ins. (a popular PPO) has just cut down the number of labs that are "preferred provider" labs from five to...one. Makes me wonder if this lab (a big national lab) is overunindated with test samples and how accurate the results are.

Nonetheless, my ANA started out at 1:80 and subsequently 1:160. However, since I have been on Imuran (can't take Plaquenil) since 2001, my ANA's (speckled pattern) hung around 1:40, but recently came in at 1:80.

As even an elevated ANA can be false-positive; and there is no one test that points to lupus, the ANA is merely an indicator of autoantibody activity. My rheumy said that most people with lupus have much higher ANA counts.

I've wondered a lot about this issue, as you all have.

Peace out.

Lynne
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09/25/2008 14:03
Mommyof1
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 I was reading the replys to this post. I went to a drs appt earlier this month and she tested for lupus and inflammation and both are negative. I feel symptoms of inflammation however including sharp pain, achiness, warmth and burning...im confused! I have many other symptoms as well. The only thing found was I am iron deficient and anemic. I had it when I was 15 as well when i had the same symptoms as now but it wasnt bad enough to do anything with. Now Im on 325mg of ferrous sulfate for the low iron. I have been on it over a week and am not feeling much change. Just the other day I felt crappy. I was just wondering if lupus can cause the IDA??! Im going to a rheumy nov 12th for the first time. I really dont know what to think!
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09/25/2008 14:06
Mommyof1
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 hey...was just wondering what tests ever came back pos for you with your lupus? ive only had the esr and ana and both were negative...my symptoms still point to lupus...what should i think? lol
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