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08/15/2008 09:15
Lauralaine
Posts: 17
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Beth--

Thanks for the encouragement! I have hope and your story helps give that to me. We know our bodies and have to be are own advocate and your right, I think the right doctor may not have all the answers right away but at least will be able to put some pieces together rather than making me feel like I'm getting the run around of one diagnosis and then a month later another. I couldn't tell you what is wrong except for I know my body and I know how I feel and it is like something takes power over me and my life is adversly affected with no relief.

Take care dearheart.

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08/15/2008 21:18
AndrogynousDream
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Posts: 8
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I am obligated to comment, but everyone seems to have covered the necessary topics. Oh, well, if nothing else, this message is another ounce of support. Can never get enough of that.

Something is obviously wrong. Keep talking until someone listens. No one wants to deal with BS, especially from people who should know better or who should support you. It's tempting to give up, thinking that everyone sees you as a pest. You have more severe symptoms, so it's easier, and more imperative, for you to keep at it. But with symptoms that are more vague, like joint pain, fever, and fatigue, a lot of people begin to think they are crazy, exaggerating, hypochondriacs, selfish, whatever.

But, whatever you have, you have something, so look for it...and anytime BS comes your way, you can always come here. It's key for situations like this that you are surrounded by people who know you're not crazy.

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08/15/2008 21:57
redhairali
Posts: 92
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This is why the internet has been so good for us. We would all think we must be insane if we didn't have forums to go to. All of the auto-immune diseases have so many different things that could happen. I don't think there could be a book with EVERY symptom listed in it. It would be HUGE. And we described what lupus was to us, every story would be different. This site is one of many that helps us to understand this bizarre disease.

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