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"i have crohns,Fibromyalgia and ra causing me chronic pain everyday . this has ta..." (tina430)

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MissNikkiAnn"When you have an illness with the name "Non-Familial Dysautonomia" (a name that most people, and even doctors, have never heard of), you need a network
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MDJunction led me to that network of people during a very confusing and sickly time. For this I am thankful. And for this reason I try my best to give back to other members the same care and help that I received through MDJunction.
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Lupus ForumsGeneral & SupportMore diagnosis....really..it's Lupus enough
03/08/2010 09:38 AM
Tina06
Tina06
 
Posts: 37
Member

On top of Lupus SLE, I now have Fibromyalia and Neuropathy. Anyone experiencing these diseases as well? Like I'm not already taking enought medication for Lupus and now I have to add more to the pill. Talk about a downer after trying to stay positive that one day I will be in remission but now I have more mess to deal with. I'm not even 30 yet and my life is just flashing before me. Sometimes I just feel like I'm the only one dealing with my issues in this world full of people and diseases. Everytime I have a problem, I try to pretend like it doesn't exist until it's unbearable that I have to mention it to my doctor. I'm just so tired of being tired and sick and depressed and weak. Sorry to be a drag today but I needed to get it out.
Pertina

"Life is not measured by the number of breathes we take but by the moments that take our breathe away."

Proverbs 3:5-8
Trust in the LORD with all your heart and lean not on your own understanding;
in all your ways acknowledge him, and he will make your paths straight
Do not be wise in your own eyes; fear the LORD and shun evil.
This will bring health to your body and nourishment to your bones.
Reply

03/08/2010 10:06 AM  Top
breezyhope
breezyhope
 
Posts: 596
Member

hi tina06, i too have the same health issues that you have, plus a few more. it does really get you down when it is always something - day in and day out. try to stay positive and vent here anytime you feel like it. hugs! wendy

03/08/2010 10:14 AM  Top
redhairali
redhairali
 
Posts: 3400
Group Leader

Sorry to hear you are having a bad day. I also hate the pile of pills I have to take each day..I was just complaining about this yesterday. Remember you are not alone in this.

Alison


Previous discussions I participated in:
Depression
Lupus
Hi, new here

03/08/2010 10:23 AM  Top
Looopie
Posts: 1866
Senior Member

Hi pertina. You are not the only one dealing with multiple lupus complications. It's extremely tiring to be sick and tired everyday... Hope you will feel better soon.

Marie


03/08/2010 11:25 AM  Top
Gen

Tina06.

I know most of us feel like this some days. Its hard to deal with everything that goes along with lupus. Gen


03/08/2010 01:57 PM  Top
imsweetestkitty
 
Posts: 44
Member

nope you are not alone...I along with many other lupus patients also have fibromyagia and a handful of other problems...like lupus isn't already enough right?? Actually most poeple I have met with lupus...not all but alot also have fibromyagia, and lupus is known to cause neuropathy in lots of lupus patients. Hang in thereSmile

Previous discussions I participated in:
I Am that hero :)
Tired
Being Believed

03/08/2010 07:05 PM  Top
mumeva
mumeva
 
Posts: 5494
Group Leader
I'm an Advocate

Hi Tina.....were all here for you and just know that your not alone on this journey. I also deal with fibromyalgia and neuropathy for which I take medication for....and yes I also take quite a few meds....unfortuantely I think most of us Lupies do. Keep positive my friend

Eva

I long to dwell in your tent forever and take refuge under the shelter of your wings: Psalms 61:4

Previous discussions I participated in:
Depression
Lupus
Still Here & Kelly Update

03/09/2010 07:05 PM  Top
heidiclouser
 
Posts: 1036
Member

Hi Tins. I have lupus, FMS, sjorgren's, raynaud's, neuropathy and non-Hodgkins lymphoma. I just got out of the hospital with congestive heart failure. My pile of pills is depressing and it takes me longer each day to get them down. Come here anytime to vent. Believe me we know how you feel.
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