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12/16/2009 12:25 PM

Information on Lupus

jackie13
jackie13  
Posts: 150
Member

Does anyone know of any websites or books that have good information on Lupus I want to learn the most about this disease as possible since I was barely diagnosed a couple months ago and its better to be informed than no nothing Smile. Thanks.

Post edited by: jackie13, at: 12/16/2009 12:25 PM

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12/16/2009 12:28 PM
Bunnyhugger75
Bunnyhugger75  
Posts: 2019
Senior Member

I think this is a good website to start from:

http://www.lupus.org/newsite/index.html

I'm sure you will get lots of good suggestions from other members on here too. It is great to educate yourself about he disease, that way you can ask better questions of your doctor.

Take Care,

Amy


12/16/2009 12:42 PM
redhairali
redhairali  
Posts: 3742
Group Leader

The Lupus Book by Danial J Wallace is very good.

Alison


12/16/2009 12:50 PM
breezyhope
breezyhope  
Posts: 596
Member

hi jackie13, try this website and see if it gives you the info you are looking for: http://www.niams.nih.gov/Health_Info/Lupus/default.asp

good luck!! wendy

Post edited by: breezyhope, at: 12/16/2009 01:14 PM


12/16/2009 01:04 PM
breezyhope
breezyhope  
Posts: 596
Member

jackie13, i just wanted to add that when i was diagnosed i went to the local library and checked out all the books that i could find on lupus, i then weeded through them to find which gave me the most info in the clearest possible terms, i then ordered, from amazon.com, the ones that i felt were most helpful. that way i didn't waste money on books that were not helpful to me. finding this site has also answered a lot of questions for me! wendy

Post edited by: breezyhope, at: 12/16/2009 01:05 PM


12/16/2009 01:21 PM
jackie13
jackie13  
Posts: 150
Member

Thanks you guys the websites were very helpful and im going to try your suggestion breezyhope and go to my local library and see what i find.

12/16/2009 05:32 PM
mumeva
mumeva  
Posts: 6150
Group Leader
I'm an Advocate

I went to the library when I was first diagnosed than I went to our local bookstore and bought some books but the best one is the one Alison mentioned.....The Lupus Book by Daniel J. Wallace, MD....that is the one I always refer to and its easy to read and understand. I sure hope you have luck finding some material regarding Lupus.....I read everything I could get my hands on I figured since this was happening to my body I wanted to know as much as I could.....wishing you well,

Eva

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