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Lupus Community Lupus Support Forums General & Support Do your relatives have Lupus?
 

Do your relatives have Lupus?


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05/30/2008 09:10
fibroforever
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 I'm just wondering how many of you have relatives that have Systemic and/or Discoid Lupus.

I've seen so many controversial (sp?) articles and comments from doctors. Some state that it skips a generation. Others say it doesn't.

Regardless of what you've heard and/or read. What do you think? Do you think it skips a generation? And do you have relatives with this horrible disease?

Amy

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown
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05/30/2008 09:39
bethany
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 The only other person in my family that has Lupus is my younger sister. I heard someone say one time that it's common for siblings to have it, though I'm not sure how true that is.

I can't find anyone in my family history who was ever diagnosed with it. Not quite sure where it came from.


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05/30/2008 14:12
hshoe29
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 My mother has a very mild SLE. However, I have a BIG bad SLE. She does not have a sun/UV light reaction. Where I exploid in the sun with 70 SPF and a hat. My mother side that lupus runs on her mothers' side of the family. I don't know how it's not linked but who knows....

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05/31/2008 16:22
angle
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 hi I was diagnosed with Lupus 4 years ago, i have had 2 cousins from the same family with lupus..my cousin Sue died from SLE when whe was 37 And Her brother is still alive, we almost him 8 years ago but he got a kidney transplant and that saved him... Although my doctor says its not hereditary i tend to believe differently...

Angle

Hi I was diagnose 4 years ago with SLE I have 2 kids my son is almost 11 and my daughter is 8.. I seem to have 1 flare after another i had a stroke a year ago.. My kids are afraid they are going to loose there mom and my husband is scared but would like to pretend there is notheing wrong..I am scared to butsome times feel I am alone.. I have had chesst pain and shortness of breath lately, and my dr. does not know why...

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05/31/2008 19:15
mumeva
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 I have sle and as far as I know there is no one in the family who has any type of lupus unless it goes way back into the family history. My daughter may have lupus but they want to test her after she has her baby which is due any day now so hopefully she doesn't have this.

Eva


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06/02/2008 08:25
lunielucy
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 My aunt was finally diagnosed a couple of weeks ago. I was diagnosed about 4 years ago now. I do think its hereditary. Really I do. My sister (once she goes to the doctor) I believe has it. All the same symptoms and signs. ( no medical insurance thats why its taking her so long to get tested)
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06/02/2008 12:24
fibroforever
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 Thanks everyone for youf input. I hope that more will respond to this post too.

I find the mystery of some of these auto-immune disorders/diseases quite interesting. So many unknowns.

I personally, don't feel that it matters if it's a sibling, a parent, or some other relative. I think it's hereditary in some way.

What made me ask this question- I have one doctor that says I DO have Lupus. Then, I have one that says, since my mom has/had it- I don't. They are both rheumy's in the same office. Again... interesting.

I hope you're all having some of your better days. Take care of yourselves!

Amy

"When you feel like giving up, remember why you held on for so long in the first place." ~Unknown
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06/26/2008 21:08
2kids2love
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 I do think there is a genetic link. My 17 y/o has panniculitis and a high ANA and is on plaquenel. My sister (my daughter's aunt)has discoid lupus and my sister-in-law has SLE (my husband's sister). So my daughter has an aunt on both sides of the family with it. Also, My daughters' greatgrandmother had MS.
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