2kids2love
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My young daughter had painful lesions under the skin on her legs for years, from the time she was 11 years old until she started plaquinel (sp?) She is now 17 and for the first time in her teenage life she is mostly pain free!! We went to a jillion docs that didn't want to diagnose a child and had 3 biopsies before she recieved the diagnosis of panniculitis. Her blood work only reveals a high ANA. It took years of persuading doctors because she was a child and no one in this area would do anything!! We saved our money in order to fly to Cleveland ohio to see a doctor that I found on the internet and finally got a diagnosis and of course with the diagnosis came the much needed medicine. Our doctor then arranged for someone locally to see her, even though wasn't 18 y/o. All I can say is, be persistent and never, never, never, give up. Try your best to remain calm when dealing with docs and offices that discount your requests for help. I like to use the question to docs like, "OK, if this were your family member and they had suffered so long, what would you do???" Don't be afraid to email docs on the web and ask for their help. You'll be surprised how easy some of these major lupus treatment/research centers are to get an appointment and if your funds are limited, ask for help!! The answer "No" is only a word so hang in there until you find the word "YES." |
Anyway, please send me a PM if you need a lending ear or someone to talk to ya. I'm here for ya. I'm pretty good about checking those every day.
