http://www.mdjunction.com/forums/lupus-discussions/feed http://www.mdjunction.com/forums/lupus-discussions/feed en-us Copyright (C) MDJunction.com. All rights reserved. Thu, 23 May 2013 21:32:40 -0700 http://www.mdjunction.com/forums/lupus-discussions/introductions-personal-stories/10703799-a-quick-hello#10703799 Hi. I thought it would be best if I started out with a quick hello. I thought I'd try this out and see how it goes since I haven't been on a site like this before. I started getting treated for Lupus about three years ago...well, I guess it's still maybe Lupus because I have all the symptoms and respond to treatment but my blood work has always been clear with no signs of anything wrong except low vitamins D and B12. I thought this forum might be a good place to find people who do understand h... Thu, 23 May 2013 21:04:28 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10701760-back-pain-in-ra-and-or-lupus#10703769 I have had back pain since high school (long before Lupus showed up) but there's nothing structurally wrong in my case. It's usually around the bra line area. My doctor said that when your shoulders are inflamed and hurting it can cause you to tense your other muscles up and that can cause the pain. I also recently finished a month of physical therapy for low back pain and a swollen disc that just popped up out of nowhere. The PT said if your core muscles are not strong then your back isn't supp... Thu, 23 May 2013 20:47:16 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10703675-pneumonia-and-the-antibiotic-used-to-treat-it#10703751 I'd be calling your doctor. You don't want to suffer during the weekend. I've had some antibiotics give me trouble. Sulfa makes me break out in a horrible rash. A generic brand of Erythromycin made my stomach hurt really bad. There office was closed but one of the docs who was doing research, talked to me on the phone and told me to stop it and eat some yougart. Penicillin took me to the ER (Sat.) when I was 15, and they said it was 3 day measles or allergic reaction, so I can't take that either... Thu, 23 May 2013 20:26:45 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10665664-gi-issues/limitstart/20#10703399 Thanks. I didn't call the rheumy, but I also haven't been taking it. Maybe I will start again.... Thu, 23 May 2013 17:26:40 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10702721-new-symptoms#10703371 HI Solupie. I'm sorry to hear you are unwell. Perhaps your rheumy could order an autoimmune panel to check if you are flaring since you are anemic with lymph node swelling, and it sounds like your immune system is trying to fight it off. If your family doctor thinks it is a boil on your forehead, why does he not prescribe antibiotics because antibacterial/cortisone ointment may not work for boils.... Thu, 23 May 2013 17:09:57 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10702472-fingers-and-toes#10703014 I have lupus plus RA and my fingers have been slowly leaning towards my pinkies, (and the pinkie leans out too). My thumbs look like an 'L'. My toes are kinda doing the leaning thing too, except with wearing shoes, I find them crossing over each other and I have to wear wide shoes. I've had lupus since 1981. So they've had years to get this way.... Thu, 23 May 2013 13:57:43 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10689062-quite-a-day-at-the-rheumys#10701768 yikes Fogish, what a day. Sounds like at least they do have a plan. I guess we sometimes have to feel for them too as it is so hard to diagnose and everyone is different. Hang in! And Miss Eva, can't you call and be on a cancellation list or something? That is such a long time and did you tell them you have not had a Dr since Dec? My goodness. Ok, done lecturing you now!! Hugs to you both!~Grammoo... Wed, 22 May 2013 22:26:37 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10699026-4-different-viruses-in-3-weeksa-new-personal-record#10701741 Sorry Lena, that stinks! Yes, my Dr warned me to stay away from sick people as I would get it and worse, Nice! So should we live in a bubble? I swear by airborne, I drink some every day, especially when I go out, cause I am not going to just sit here all the time, oh ish! Hope you feel better soon! Hugs!Grammoo... Wed, 22 May 2013 22:11:41 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10691764-not-diagnosed-high-ana-should-i-even-be-here#10701735 Hi, welcome. If you have Lupus or not, you have the symptoms and on here you have support, a place to vent and be heard. Hang in and stick around, you will make lots of friends and learn lots along the way. Chin up! Hugs!Grammoo... Wed, 22 May 2013 22:07:39 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10700311-cnsneuopsych-lupus#10700311 Thanks, if I might add. My neurosurgeon has no answers regarding the atrophy and paralysis. So, when the rheumatologist suggests that it could be lupus causing it what he's suggesting is, let's consider it a possibility; which of course means months or years of horsing around proving it to be CNS or just a freak lupus one time consequence. So I must stress, no one has said I'm CNS. :)... Wed, 22 May 2013 11:22:44 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10698786-cnsneuopsych-lupus#10700136 Oh my gosh, Eva. I'm out of bed maybe 5 hours a day. And 3 of those I'm laying on the couch. I just can't make myself function. The thing is, I can live with whatever comes my way... and be happy. I just like to know enough to have a little bit of a plan. It's weird. We're just so up in the air right now. Should we plan on my returning to work? On my being at home from now on? Should we assume I'll need increasingly more care, and move home to be near family? (All hypotheticals, I don't expe... Wed, 22 May 2013 09:37:59 -0700 http://www.mdjunction.com/forums/lupus-discussions/introductions-personal-stories/10621806-at-work#10700101 Just checking in to see how you are feeling Shordey - hoping all is well. Jen (JJ)... Wed, 22 May 2013 09:14:24 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10697155-cant-win-for-loosing#10699017 I'm soo sorry to hear that you are dealing with that....I too am extremely med sensitive and had to go through about 8 months of trial and error aka hell finding a combo that works once I got a formal lupus/fibro DX. This site is a great place although I haven't had much time to visit lately.... Tue, 21 May 2013 20:14:51 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10697223-we-all-need-a-good-laugh-at-times-#10698854 Adorable...Thanks for the chuckle.. Kelly... Tue, 21 May 2013 18:46:52 -0700 http://www.mdjunction.com/forums/lupus-discussions/introductions-personal-stories/10693289-lupus-and-blackouts#10698623 Lizzie, your memory problems sounds exactly like how I am when I have a seizure. If someone hadn't been with me I would have thought I only blacked out too. After a seizure I am confused and come in and out of consciousness. You should really talk to neuro about doing some tests. It is so sad that you are going through this.... Tue, 21 May 2013 16:46:14 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10694590-does-the-cold-weather-cause-pain-for-any-other-lupus-patients#10698294 Oh, yes! I am a walking barometer....I can feel the weather change coming sometimes two days in advance. Especially in the springtime when we get significant temperature drops here in Colorado.... Tue, 21 May 2013 14:16:56 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10697224-started-cellcept-today#10697866 I was also on it for a couple of years and had no problems. But I moved to another state and switched doctors, and different doctors have their own way of treating lupus. I hope things work out for out for you. Alison... Tue, 21 May 2013 10:57:01 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10695270-advice-please/limitstart/10#10697845 Thanks fogish x... Tue, 21 May 2013 10:50:55 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10670874-the-worst-doctor-experience-of-my-life/limitstart/10#10696813 That's a great point about being prepared for when a doctor is leaving - whether for retirement, illness, death, moving to a new practice, whatever. I never thought about it before. Thanks for posting this. So glad you were able to work things through with Dr. H, and that she really let the other doctor have. Oh, would I love to know more people like Dr. H... Tue, 21 May 2013 01:06:00 -0700 http://www.mdjunction.com/forums/lupus-discussions/general-support/10692113-red-pinsized-dots-what-are-they#10696517 I've had the red dots as well. Mentioned it to my rheumy who told me it is likely related to my Lupus as it manifests differently in every patient... Mine usually clears up in a week or two...so odd! Hope you feel better, Jen... Mon, 20 May 2013 20:55:58 -0700